Questions? Contact Kathryn Ely kely@angelman.org.
About the Sophie Burdine Schwartz Impact Fund
The intent of the Sophie Burdine-Schwartz Impact Fund is to fund joy-driven experiences and everyday pleasures that don’t fit neatly into a clinical or caregiving budget.
Apply for something that would help make their life a little happier, more joyful, and more full of the experiences that matter to them.
This fund is not for a clinical need, not a caregiver need, but something that would make that specific person’s life happier, chosen by asking, as best as possible, what they would actually want.
Because a meaningful life is about more than meeting needs. It’s about making room for joy.
Travel & Family Experiences
Helping a family visit grandparents or relatives they've never been able to afford to see.
Recreation Memberships
A family pool membership, a YMCA membership, or a year-long children's museum membership.
Streaming & Entertainment
A family pool membership, a YMCA membership, or a year-long children's museum membership.
Everyday Joys
Bikes, outings, and experiences chosen because they'd make that person smile, not because they check a therapeutic box.
Eligibility for Funding
To be eligible to receive a Respite Fund grant:
- Applicant must be a caregiver (legal guardian, primary caregiver, etc) for an individual diagnosed with Angelman syndrome.
- Applicant must live in the United States.
- Applicant cannot have received an ASF grant in the last 3 years. Example, if you are awarded any grant during the October 2023 grant cycle, you would not be eligible to apply again until the 2026 grant cycle.
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NOTE: The total requested amount for funding may not be met. There is a funding limit of up to $1,000 per Respite award.