AS Grows Up
Adult Resources
Introducing AS Grows Up
The Angelman Syndrome Foundation is committed to supporting every individual, every step of the way. As individuals with Angelman syndrome age, new needs arise… for housing, programs, community, care, and more.
In January 2025, ASF published an Adult Survey. Caregivers and family members of adults with AS shared their realities including: their victories, challenges, and urgent gaps in resources and support. Now, we are taking bold action to close the gaps in essential support and expand the vital resources and services families desperately need. Throughout 2025, watch for more and expanded resources for adults.
The ASF Adult Taskforce creates and cultivates resources related to adulthood in Angelman syndrome or transitioning to adulthood.Â
Questions or Requests
If you have a question or idea for an existing or new resource the team could look into, contact Robin Wilkerson robin.r.wilkerson@gmail.com.
Download the customizable binder. Helpful for every day and transition of care.
Family Champions with Adults
The ASF Family Champions are family members who have volunteered to be available to other families to share their knowledge, experience and lend an ear. These families are a great resource for questions, concerns and advice on various aspects of adults with AS transitioning and thriving.Â
Meet the ASF Family Champions with Adults
Adult Housing Champions
Adults with Angelman syndrome live various settings. Homes of their own, with a family member, with a host or foster family, or in a provider-owned or -operated setting. The Adult Housing Champions have navigated living situations for their loved one and are available to guide and share their experience with others.
Meet the Adult Housing Champions
Adulthood Playlist
See the Adulthood Playlist on YouTube for recordings of webinars and ASF Conference sessions dedicated to various topics on Adulthood in AS:
- Transitioning to adulthood
- Housing options
- Care providers
- Financial Planning
- Health concerns and more
Financial Planning Series
Start planning now and you can make changes as your child ages and grows. The tool helps you express future wishes, plan for paying for needs, where to live and more.
Free Webinars
The Arc offers free webinars on a variety of topics. See the full list of archived webinars for descriptions and presentation slides.
- Supporting People with I/DD to Identify Appropriate Housing
- Grief and Loss in the Lives of People with Intellectual and Developmental Disabilities
- Aging and I/DD: Planning for Growing Older
- Breaking Up is Hard to Do: Divorce and Families that Include a Child with I/DD
- Getting There: Including Transportation in a Future Plan
- SibTips Webinar: Understanding the Alphabet Soup of Future Planning
- First Steps in Future Planning: Expressing Future Wishes and Financial Planning