Throughout the year, the Angelman Syndrome Foundation hosts, participates in and receives support from events across the country. Below find a list of upcoming events.
Partner with the ASF to get your name in front of the Angelman Community at nationwide events.
Part of the Future Care Planning Series: ABLE Account Creation. Acting now to set up an ABLE Account helps provide short- and long-term financial security for your loved one without jeopardizing government benefits, helping you feel confident in what can be in your loved ones’ name, and what cannot.
In the ABLE Account Creation module, you will explore the benefits of ABLE Accounts, including setup and critical funding considerations.
Then, Join the live Q&A session on ABLE Account Creation.
Haven’t enrolled in the Future Care Planning Series? Enroll Today!
Enter your name, email and password: ASF2026
Part of the Future Care Planning Series: Estate Planning Essentials Live Q&A.
Taking the first steps to start your comprehensive estate planning and considering legal options, like guardianship, empowers you and your family to document your Future Care Plan, alleviating the worry that the uncertain future holds.
In the Estate Planning Essentials and Guardianship/Conservatorship Options module, you will establish a strong foundation on estate planning for your entire family, and a clear understanding of legal options available for your loved one.
Then, join the live Q&A session on Estate Planning Essentials.
Haven’t enrolled in the Future Care Planning Series? Enroll Today!
Enter your name, email and password: ASF2026
This event takes place every other year in a different location so that families from all over the US can have the opportunity to attend. The conference unites a diverse group of people including those with Angelman syndrome, their families, siblings, caregivers, clinicians, therapists, researchers, and friends.
Throughout the conference, attendees attend workshops, seminars, and presentations that cover a spectrum of topics, providing valuable insights into what we know about AS, how best to care for individuals living with AS throughout their lifetime, therapeutic approaches, and practical strategies. Outside of education, attendees will experience community, connection, and celebration.
Part of the Future Care Planning Series: Cash Flow Management Live Q&A.
Understanding your own finances is essential to helping you manage resources effectively across every stage of your loved one’s life, providing crucial stability for you and your family.
In the Cash Flow Management module, you will complete your own cash flow tailored to your family’s unique needs, and understand how to utilize it in your broader financial plan.
Then, join the live Q&A session on Cash Flow Management.
Haven’t enrolled in the Future Care Planning Series? Enroll Today!
Enter your name, email and password: ASF2026
Part of the Future Care Planning Series: Cash Flow Management. Understanding your own finances is essential to helping you manage resources effectively across every stage of your loved one’s life.
In the Cash Flow Management module, you will complete your own cash flow tailored to your family’s unique needs, and understand how to utilize it in your broader financial plan. Then join a live Q&A to ask questions and hear from experts.
Haven’t enrolled in the Future Care Planning Series? Enroll Today!
Enter your name, email and password: ASF2026
Golf Tournament at Pine Valley Golf Club. Lunch, awards, raffles and more!
As individuals with Angelman syndrome grow, so do the questions around behavior, anxiety, and support. Christopher Keary, MD from Massachusetts General Hospital, will discuss anxiety and complex behaviors, followed by Q&A.
Every year in May, Angelman Strong events come in many forms—ranging from local walks and runs, tournaments, community gatherings, and awareness campaigns. No matter the format, each event brings families, friends, and supporters together to honor and celebrate individuals with Angelman syndrome.
Whether you are navigating services now or planning for the future, this conversation will help equip you with the knowledge and tools needed to advocate for the supports your family & our community relies on. We’ll discuss:
