Throughout the year, the Angelman Syndrome Foundation hosts, participates in and receives support from events across the country. Below find a list of upcoming events.
Partner with the ASF to get your name in front of the Angelman Community at nationwide events.
As individuals with Angelman syndrome grow, so do the questions around behavior, anxiety, and support. Christopher Keary, MD from Massachusetts General Hospital, will discuss anxiety and complex behaviors, followed by Q&A.
Golf Tournament at Pine Valley Golf Club. Lunch, awards, raffles and more!
This event takes place every other year in a different location so that families from all over the US can have the opportunity to attend. The conference unites a diverse group of people including those with Angelman syndrome, their families, siblings, caregivers, clinicians, therapists, researchers, and friends.
Throughout the conference, attendees attend workshops, seminars, and presentations that cover a spectrum of topics, providing valuable insights into what we know about AS, how best to care for individuals living with AS throughout their lifetime, therapeutic approaches, and practical strategies. Outside of education, attendees will experience community, connection, and celebration.
Be part of Chicago Marathon Weekend excitement without committing to 26.2 miles. Be part of the Windy City Angels and run the Abbott Chicago 5K in downtown Chicago.
The ASF team in the Bank of America Chicago Marathon is the Windy City Angels! From first-time marathoners to elite athletes, the team is united in using their love of running to support the Angelman community and raise awareness.
Every year in May, Angelman Strong events come in many forms—ranging from local walks and runs, tournaments, community gatherings, and awareness campaigns. No matter the format, each event brings families, friends, and supporters together to honor and celebrate individuals with Angelman syndrome.
Whether you are navigating services now or planning for the future, this conversation will help equip you with the knowledge and tools needed to advocate for the supports your family & our community relies on. We’ll discuss:
Register to attend a live webinar to learn about Angelman syndrome, the research around it and supports that are available to help you through the journey. This webinar is for newly diagnosed caregivers, or experienced caregivers who are looking to catch up on Angelman research and resources.
AS 101 is held every few months on the 2nd Friday at 11:00am EST. If you can’t attend live, watch a recorded version.
Angelman syndrome advocates from around the United States meet in Washington, D.C. Day 1 is training for meetings and Day 2, advocates meet with their Members of Congress to educate them on their personal experiences with Angelman syndrome. These meetings help build relationship and bring awareness to AS. When lawmakers hear directly from advocates, Angelman syndrome stops being a rare disease on paper and becomes a person they remember when policy decisions are made.
Since 2013, International Angelman Day has been the driving force in uniting AS families and patient organizations around the world for a common purpose – raising awareness of Angelman syndrome. The day is observed by over 50 charitable/support organizations based in over 40 countries around the world.
