Find resources you need to navigate your journey with Angelman syndrome. Whether you are newly diagnosed or looking for ongoing support, you’ll find resources to assist every step of the way. Use filters to search by subtopics, life stage, or even location to find information.
Sybille Kraft-Bellamy, an LGIT expert and mother to a child with Angelman syndrome, discusses the ABC’s of implementing the LGIT diet during this webinar.
Sybille Kraft-Bellamy, an LGIT expert and mother to a child with Angelman syndrome, discusses the ABC’s of implementing the LGIT diet during this webinar.
Robert Carson, MD, PhD at Vanderbilt University discusses his research and findings on characterization and treatment of abnormal movements in Angelman syndrome.
Robert Carson, MD, PhD at Vanderbilt University discusses his research and findings on characterization and treatment of abnormal movements in Angelman syndrome.
ASF Educational Webinar Series by Eric Wright. Discusses the concept of guardianship, particularly in the context of planning for individuals who may require assistance in managing their personal and financial affairs. It explores the responsibilities of a guardian, the legal processes involved in establishing guardianship, and considerations for families contemplating this option. The video aims to inform viewers about the implications of guardianship and alternative approaches to support decision-making for those with diminished capacity.
ASF Educational Webinar Series by Eric Wright. Discusses the concept of guardianship, particularly in the context of planning for individuals who may require assistance in managing their personal and financial affairs. It explores the responsibilities of a guardian, the legal processes involved in establishing guardianship, and considerations for families contemplating this option. The video aims to inform viewers about the implications of guardianship and alternative approaches to support decision-making for those with diminished capacity.
Jessica Duis, MD, MS discusses many aspects of caring for teens and adults with AS. Topics covered are: transition of care, routine, nutrition, behavior, sleep and mobility.
Jessica Duis, MD, MS discusses many aspects of caring for teens and adults with AS. Topics covered are: transition of care, routine, nutrition, behavior, sleep and mobility.
ASF gives families a place to begin—offering support, reassurance, and real-life examples that show what is possible. We offer ideas that are already tested by others, families don’t have to start from scratch when planning for the future.
Adult Housing Champions are caregivers who have navigated one of these situations for their loved one and are available to guide and share their experience with others.
ASF gives families a place to begin—offering support, reassurance, and real-life examples that show what is possible. We offer ideas that are already tested by others, families don’t have to start from scratch when planning for the future.
Adult Housing Champions are caregivers who have navigated one of these situations for their loved one and are available to guide and share their experience with others.
Connect with other siblings, learn about available resources, hear from experts and discuss plans for long-term care for your sibling with Angelman syndrome.
There is a special relationship between individuals with AS and their siblings. It can be loving and carefree, and at other times frustrating and overwhelming. Siblings are the future caretakers of their siblings and it’s a very important role that requires support and lots of planning.
Connect with other siblings, learn about available resources, hear from experts and discuss plans for long-term care for your sibling with Angelman syndrome.
There is a special relationship between individuals with AS and their siblings. It can be loving and carefree, and at other times frustrating and overwhelming. Siblings are the future caretakers of their siblings and it’s a very important role that requires support and lots of planning.
A collection of videos focusing on various aspects of life for adults with Angelman syndrome. The playlist includes expert discussions on topics such as health management, independent living, employment opportunities, and social engagement for adults with Angelman syndrome. The series aims to provide valuable insights and resources for caregivers, families, and individuals seeking to enhance the quality of life for adults affected by this condition.
A collection of videos focusing on various aspects of life for adults with Angelman syndrome. The playlist includes expert discussions on topics such as health management, independent living, employment opportunities, and social engagement for adults with Angelman syndrome. The series aims to provide valuable insights and resources for caregivers, families, and individuals seeking to enhance the quality of life for adults affected by this condition.
The mission of Angelman Syndrome Foundation is to advance the awareness and treatment of Angelman syndrome through education and information, research and support for individuals with Angelman syndrome, their families and other concerned parties. We exist to give all of them a reason to smile, with the ultimate goal of finding a cure.