Find resources you need to navigate your journey with Angelman syndrome. Whether you are newly diagnosed or looking for ongoing support, you’ll find resources to assist every step of the way. Use filters to search by subtopics, life stage, or even location to find information.
Come learn more about AS, the research around it and ALL the supports that are out there to help you through the journey!
Come learn more about AS, the research around it and ALL the supports that are out there to help you through the journey!
Angelman A to Z is a resource for parents, caregivers, doctors, therapists, teachers and anyone involved in the care of a person with AS. The information comes from tips, anecdotes and discoveries from your experiences. Thank you to all who contributed to the 4th and latest edition that was created in 2020.
Angelman A to Z is created by Alice Evans, mother to Whitney, who is an adult with Angelman syndrome.
Angelman A to Z is a resource for parents, caregivers, doctors, therapists, teachers and anyone involved in the care of a person with AS. The information comes from tips, anecdotes and discoveries from your experiences. Thank you to all who contributed to the 4th and latest edition that was created in 2020.
Angelman A to Z is created by Alice Evans, mother to Whitney, who is an adult with Angelman syndrome.
Free. Making connections with others in the Angelman community can be very powerful and the ASF Family Champions are available for all of these reasons and more! These fellow AS family members have volunteered to be available to other families to share their knowledge, experience and lend an ear.
Free. Making connections with others in the Angelman community can be very powerful and the ASF Family Champions are available for all of these reasons and more! These fellow AS family members have volunteered to be available to other families to share their knowledge, experience and lend an ear.
An introduction to the Angelman Syndrome Foundation (ASF) for families and caregivers. It provides information about the foundation’s mission, services, and resources, including research initiatives, specialized clinics, financial assistance programs, and educational materials to support individuals with Angelman syndrome and their families. The brochure also highlights ways to connect with the community, participate in events, and access tools to improve quality of life and foster hope for a cure.
An introduction to the Angelman Syndrome Foundation (ASF) for families and caregivers. It provides information about the foundation’s mission, services, and resources, including research initiatives, specialized clinics, financial assistance programs, and educational materials to support individuals with Angelman syndrome and their families. The brochure also highlights ways to connect with the community, participate in events, and access tools to improve quality of life and foster hope for a cure.
The Global Angelman Syndrome Registry is an international initiative designed to collect comprehensive data on individuals diagnosed with Angelman syndrome. By gathering information from parents, caregivers, clinicians, and researchers, the registry aims to centralize knowledge about the condition’s natural history, treatment outcomes, and daily impacts. This collective effort seeks to enhance understanding, support the development of effective treatments, and improve the quality of life for those affected by Angelman syndrome.
The Global Angelman Syndrome Registry is an international initiative designed to collect comprehensive data on individuals diagnosed with Angelman syndrome. By gathering information from parents, caregivers, clinicians, and researchers, the registry aims to centralize knowledge about the condition’s natural history, treatment outcomes, and daily impacts. This collective effort seeks to enhance understanding, support the development of effective treatments, and improve the quality of life for those affected by Angelman syndrome.
Free. Even though caring for an individual with AS can be rewarding, we know that it can be challenging, stressful and isolating. Therefore, ASF is proud to offer counseling services at no charge to Angelman families in the United States.
Free. Even though caring for an individual with AS can be rewarding, we know that it can be challenging, stressful and isolating. Therefore, ASF is proud to offer counseling services at no charge to Angelman families in the United States.
A guide to support families navigating life after an Angelman syndrome diagnosis. It provides a structured roadmap covering key topics such as medical care, therapies, school planning, insurance, financial planning, and community support. The guide includes checklists for the first 30, 60, and 90 days post-diagnosis, as well as long-term considerations. It also offers links to essential resources, including specialized clinics, financial assistance programs, and communication tools, helping families organize and access the necessary support systems.
A guide to support families navigating life after an Angelman syndrome diagnosis. It provides a structured roadmap covering key topics such as medical care, therapies, school planning, insurance, financial planning, and community support. The guide includes checklists for the first 30, 60, and 90 days post-diagnosis, as well as long-term considerations. It also offers links to essential resources, including specialized clinics, financial assistance programs, and communication tools, helping families organize and access the necessary support systems.
The mission of Angelman Syndrome Foundation is to advance the awareness and treatment of Angelman syndrome through education and information, research and support for individuals with Angelman syndrome, their families and other concerned parties. We exist to give all of them a reason to smile, with the ultimate goal of finding a cure.