Find resources you need to navigate your journey with Angelman syndrome. Whether you are newly diagnosed or looking for ongoing support, you’ll find resources to assist every step of the way. Use filters to search by subtopics, life stage, or even location to find information.
Parent of an 28-year-old daughter with Angelman syndrome, Robin Wilkerson discuss the importance of community and how to support adults.
Parent of an 28-year-old daughter with Angelman syndrome, Robin Wilkerson discuss the importance of community and how to support adults.
Prefer to listen on your favorite podcast platform?
Find full episodes on Apple Podcasts, Buzzsprout, Spotify, and YouTube.
Dr. Ron Thibert, ASF Clinician at Massachusetts General Hospital, discusses everything families need to know about seizures in Angelman syndrome.
Dr. Ron Thibert, ASF Clinician at Massachusetts General Hospital, discusses everything families need to know about seizures in Angelman syndrome.
Prefer to listen on your favorite podcast platform?
Find full episodes on Apple Podcasts, Buzzsprout, Spotify, and YouTube.
Fathers discuss everything there is to know about being a dad to a child with Angelman syndrome.
Fathers discuss everything there is to know about being a dad to a child with Angelman syndrome.
Prefer to listen on your favorite podcast platform?
Find full episodes on Apple Podcasts, Buzzsprout, Spotify, and YouTube.
In this previously recorded conversation, listen to medical experts answer commonly asked questions about medical care.
In this previously recorded conversation, listen to medical experts answer commonly asked questions about medical care.
Prefer to listen on your favorite podcast platform?
Find full episodes on Apple Podcasts, Buzzsprout, Spotify, and YouTube.
In this previously recorded webinar, listen to an “ask all, tell all” session with four Angelman syndrome clinical experts.
In this previously recorded webinar, listen to an “ask all, tell all” session with four Angelman syndrome clinical experts.
Prefer to listen on your favorite podcast platform?
Find full episodes on Apple Podcasts, Buzzsprout, Spotify, and YouTube.
Christopher Keary, MD, Behavioral Director at the MGH Angelman Syndrome Clinic, and Cesar Ochoa-Lubinoff, MD, MPH, ASF Clinic Director at Cedars-Sinai, offer valuable insights on evaluation, management, and recommended treatment options for unique and challenging behaviors in Angelman syndrome.
Christopher Keary, MD, Behavioral Director at the MGH Angelman Syndrome Clinic, and Cesar Ochoa-Lubinoff, MD, MPH, ASF Clinic Director at Cedars-Sinai, offer valuable insights on evaluation, management, and recommended treatment options for unique and challenging behaviors in Angelman syndrome.
Prefer to listen on your favorite podcast platform?
Find full episodes on Apple Podcasts, Buzzsprout, Spotify, and YouTube.
In this previously recorded conversation, listen to a Q&A moderated by Dr. Elizabeth Jalazo about exciting clinical trial news.
In this previously recorded conversation, listen to a Q&A moderated by Dr. Elizabeth Jalazo about exciting clinical trial news.
Prefer to listen on your favorite podcast platform?
Find full episodes on Apple Podcasts, Buzzsprout, Spotify, and YouTube.
The mission of Angelman Syndrome Foundation is to advance the awareness and treatment of Angelman syndrome through education and information, research and support for individuals with Angelman syndrome, their families and other concerned parties. We exist to give all of them a reason to smile, with the ultimate goal of finding a cure.