Resources

Find resources you need to navigate your journey with Angelman syndrome. Whether you are newly diagnosed or looking for ongoing support, you’ll find resources to assist every step of the way. Use filters to search by subtopics, life stage, or even location to find information.

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Behavior
Document | Printable
Applied Behavior Analysis (ABA) Toolkit

Applied Behavior Analysis (ABA) is a therapy that uses evidence-based strategies to help individuals learn skills and reduce challenging behaviors by understanding how behavior works and how it is influenced by the environment. It is often used to support communication, daily living skills, and independence.

This resource is designed to support families of individuals with Angelman syndrome as they consider, implement, or reassess ABA as part of a broader, whole-child support plan.

Applied Behavior Analysis (ABA) is a therapy that uses evidence-based strategies to help individuals learn skills and reduce challenging behaviors by understanding how behavior works and how it is influenced by the environment. It is often used to support communication, daily living skills, and independence.

This resource is designed to support families of individuals with Angelman syndrome as they consider, implement, or reassess ABA as part of a broader, whole-child support plan.

Behavior | Seizures
Video
ABC's of LGIT

Sybille Kraft-Bellamy, an LGIT expert and mother to a child with Angelman syndrome, discusses the ABC’s of implementing the LGIT diet during this webinar.

Sybille Kraft-Bellamy, an LGIT expert and mother to a child with Angelman syndrome, discusses the ABC’s of implementing the LGIT diet during this webinar.

Behavior
Video
Anxiety and Challenging Behavior (2019)

Christopher Keary, MD discusses anxiety and challenging behaviors at the 2019 ASF Family Conference

Christopher Keary, MD discusses anxiety and challenging behaviors at the 2019 ASF Family Conference

Behavior
Video
Behavior and Anxiety (2021)

Dr. Christopher Keary, Behavioral Director at the Massachusetts General Hospital Angelman Syndrome Clinic, discusses anxiety and behavioral challenges in individuals with Angelman Syndrome. He provides insights into the evaluation, management, and treatment options for these unique and challenging behaviors.

Dr. Christopher Keary, Behavioral Director at the Massachusetts General Hospital Angelman Syndrome Clinic, discusses anxiety and behavioral challenges in individuals with Angelman Syndrome. He provides insights into the evaluation, management, and treatment options for these unique and challenging behaviors.

Behavior
Video
Behavior and Anxiety (2023)

Experts discuss common causes of behavior changes and signs of anxiety in individuals with Angelman Syndrome. They explore triggers that can increase anxiety and provide treatment options and interventions to manage these challenges effectively.

Experts discuss common causes of behavior changes and signs of anxiety in individuals with Angelman Syndrome. They explore triggers that can increase anxiety and provide treatment options and interventions to manage these challenges effectively.

Behavior
Video
Behavior and Anxiety (2024)

Christopher Keary, MD, Behavioral Director at the MGH Angelman Syndrome Clinic, and Cesar Ochoa-Lubinoff, MD, MPH, ASF Clinic Director at Cedars-Sinai, will offer valuable insights on evaluation, management, and recommended treatment options for unique and challenging behaviors in Angelman syndrome.

Christopher Keary, MD, Behavioral Director at the MGH Angelman Syndrome Clinic, and Cesar Ochoa-Lubinoff, MD, MPH, ASF Clinic Director at Cedars-Sinai, will offer valuable insights on evaluation, management, and recommended treatment options for unique and challenging behaviors in Angelman syndrome.

Behavior
Podcast
Behavior and Anxiety (2024)

Christopher Keary, MD, Behavioral Director at the MGH Angelman Syndrome Clinic, and Cesar Ochoa-Lubinoff, MD, MPH, ASF Clinic Director at Cedars-Sinai, offer valuable insights on evaluation, management, and recommended treatment options for unique and challenging behaviors in Angelman syndrome.

Christopher Keary, MD, Behavioral Director at the MGH Angelman Syndrome Clinic, and Cesar Ochoa-Lubinoff, MD, MPH, ASF Clinic Director at Cedars-Sinai, offer valuable insights on evaluation, management, and recommended treatment options for unique and challenging behaviors in Angelman syndrome.

Behavior
Service
Behavior Consultation w/ Dr. Christopher Keary

Free. With Angelman syndrome comes some unique and challenging behaviors and increasing anxiety. The ASF is happy to offer assistance and information about dealing with and understanding these behaviors, free of charge.

Free. With Angelman syndrome comes some unique and challenging behaviors and increasing anxiety. The ASF is happy to offer assistance and information about dealing with and understanding these behaviors, free of charge.

Behavior
Service | Video
Behavior Training Series

This series delves into the various social and environmental factors that can influence aggressive behaviors in individuals with Angelman syndrome. It offers insights into understanding these behaviors and provides strategies for caregivers, educators, and healthcare professionals to manage and mitigate aggression effectively. The content is designed to enhance the quality of life for individuals with Angelman syndrome by promoting positive behavioral interventions.

This series delves into the various social and environmental factors that can influence aggressive behaviors in individuals with Angelman syndrome. It offers insights into understanding these behaviors and provides strategies for caregivers, educators, and healthcare professionals to manage and mitigate aggression effectively. The content is designed to enhance the quality of life for individuals with Angelman syndrome by promoting positive behavioral interventions.

Behavior
Video
Clinical Panel (2024)

Information and links to products for sleep, beds, toilet training and more.

Information and links to products for sleep, beds, toilet training and more.