Introducing AS Grows Up
Life with Angelman syndrome continues to evolve through adulthood, bringing new opportunities, questions, and challenges. The Angelman Syndrome Foundation has created resources and tools to help adults with Angelman syndrome, their families, caregivers, and support teams navigate adulthood with greater information and confidence.
These resources found on this page are designed to support individuals and their families as they plan for a fulfilling and meaningful future.
The ASF Adult Taskforce creates and cultivates resources related to adulthood in Angelman syndrome or transitioning to adulthood.Â
Questions or Requests
If you have a question or idea for an existing or new resource the team could look into, contact Robin Wilkerson robin.r.wilkerson@gmail.com.
Download the customizable binder. Helpful for every day and transition of care.
The ASF Family Champions are family members who have volunteered to be available to other families to share their knowledge, experience and lend an ear. These families are a great resource for questions, concerns and advice on various aspects of adults with AS transitioning and thriving.Â
Meet the ASF Family Champions with Adults
Adults with Angelman syndrome live various settings. Homes of their own, with a family member, with a host or foster family, or in a provider-owned or -operated setting. The Adult Housing Champions have navigated living situations for their loved one and are available to guide and share their experience with others.
Meet the Adult Housing Champions
See the Adulthood Playlist on YouTube for recordings of webinars and ASF Conference sessions dedicated to various topics on Adulthood in AS:
Find episodes of the ASF Podcast dedicated to various topics on Adulthood in AS on Spotify, Apple Podcasts & YouTube:
A four-track curriculum designed to help families establish the legal, financial, and government benefit building blocks of a Future Care Plan for their loved one with special needs.
