A guide by Lizzie Sordia provides essential information on obtaining medical equipment and supplies for individuals with Angelman syndrome through insurance or Medicaid. It outlines the steps to secure coverage, including obtaining a prescription from a doctor, writing a Letter of Medical Necessity, and working with a Durable Medical Equipment (DME) provider. The guide lists commonly covered equipment such as wheelchairs, incontinence products, communication devices, bath chairs, and orthotics. It also offers guidance on appealing insurance denials and finding alternative funding sources if coverage is denied.
The mission of Angelman Syndrome Foundation is to advance the awareness and treatment of Angelman syndrome through education and information, research and support for individuals with Angelman syndrome, their families and other concerned parties. We exist to give all of them a reason to smile, with the ultimate goal of finding a cure.