This session discusses the challenges and emotional aspects of entrusting the care of a loved one with Angelman syndrome to others. The presentation offers insights into building trust with caregivers, understanding the importance of self-care for primary caregivers, and strategies to ensure the well-being of both the individual with Angelman syndrome and their family members. It aims to provide guidance and support for families navigating the complexities of caregiving and the transition towards shared care responsibilities.
The mission of Angelman Syndrome Foundation is to advance the awareness and treatment of Angelman syndrome through education and information, research and support for individuals with Angelman syndrome, their families and other concerned parties. We exist to give all of them a reason to smile, with the ultimate goal of finding a cure.