First 100 Days Journey

A guide to support families navigating life after an Angelman syndrome diagnosis. It provides a structured roadmap covering key topics such as medical care, therapies, school planning, insurance, financial planning, and community support. The guide includes checklists for the first 30, 60, and 90 days post-diagnosis, as well as long-term considerations. It also offers links to essential resources, including specialized clinics, financial assistance programs, and communication tools, helping families organize and access the necessary support systems.