The DEE-P Connections website offers a request form for Parent and Sibling Kits, designed to support families with a child diagnosed with a rare epilepsy. These kits provide resources and materials tailored for parents and siblings to help them understand and manage the challenges associated with rare epilepsies. Families are encouraged to join the DEE-P Family Community to access these kits. Currently, the program is available to U.S. residents, with many kit contents also accessible for download online.
The mission of Angelman Syndrome Foundation is to advance the awareness and treatment of Angelman syndrome through education and information, research and support for individuals with Angelman syndrome, their families and other concerned parties. We exist to give all of them a reason to smile, with the ultimate goal of finding a cure.