Use of Conventional and Complementary and Alternative Treatments for Problem Behaviors in Angelman Syndrome

$40,269

Due to the relative rarity of AS, best treatment practices are often derived from parent questionnaires sent throughout the U.S. With this in mind, the ASF funded this research work by Dr. Peters to use a web-based parent questionnaire aimed at delineating extensive information regarding the use of traditional and alternative treatments for challenging behaviors in AS. The work showed that more than half (53% of 333 parents completing the survey of the caregivers) reported individuals using at least one alternative treatment. The most popular alternative treatments include melatonin, omega-3 fatty acids/fish oil, folic acid and magnesium. Data from this questionnaire are still under evaluation.