Throughout the year, the Angelman Syndrome Foundation hosts, participates in and receives support from events across the country. Below find a list of upcoming events.
Partner with the ASF to get your name in front of the Angelman Community at nationwide events.
Part of the Future Care Planning Series: Estate Planning Essentials Live Q&A.
Taking the first steps to start your comprehensive estate planning and considering legal options, like guardianship, empowers you and your family to document your Future Care Plan, alleviating the worry that the uncertain future holds.
In the Estate Planning Essentials and Guardianship/Conservatorship Options module, you will establish a strong foundation on estate planning for your entire family, and a clear understanding of legal options available for your loved one.
Then, join the live Q&A session on Estate Planning Essentials.
Haven’t enrolled in the Future Care Planning Series? Enroll Today!
Enter your name, email and password: ASF2026
Guided tasting event at Whiskey House Nashville. Limited space is available for guests to experience 6-8 rare, handpicked whiskeys. A $200 donation reserves your spot. Contact teamsilashommes@gmail.com to inquire.
Introducing the Magical Miles Angels! Join the Angelman Syndrome Foundation team for the Disney Princess Half Marathon Weekend. With four events to choose from, runners of all levels can come together to celebrate community, raise awareness, and support the Angelman syndrome community at the happiest place on earth!
Angelman syndrome advocates from around the United States meet in Washington, D.C. Day 1 is training for meetings and Day 2, advocates meet with their Members of Congress to educate them on their personal experiences with Angelman syndrome. These meetings help build relationship and bring awareness to AS. When lawmakers hear directly from advocates, Angelman syndrome stops being a rare disease on paper and becomes a person they remember when policy decisions are made.
Every year in May, Angelman Strong events come in many forms—ranging from local walks and runs, tournaments, community gatherings, and awareness campaigns. No matter the format, each event brings families, friends, and supporters together to honor and celebrate individuals with Angelman syndrome.
The ASF team in the Bank of America Chicago Marathon is the Windy City Angels! From first-time marathoners to elite athletes, the team is united in using their love of running to support the Angelman community and raise awareness.
Be part of Chicago Marathon Weekend excitement without committing to 26.2 miles. Be part of the Windy City Angels and run the Abbott Chicago 5K in downtown Chicago.
Last month, Ultragenyx announced their phase 3 clinical trial for GTX-102 (ASPIRE) did not meet primary or secondary endpoints. Learn more about what that means. Register to attend and submit questions ahead of time.
Part of the Future Care Planning Series: ABLE Account Live Q&A.
Acting now to set up an ABLE Account helps provide short- and long-term financial security for your loved one without jeopardizing government benefits, helping you feel confident in what can be in your loved ones’ name, and what cannot.
In the ABLE Account Creation module, you will explore the benefits of ABLE Accounts, including setup and critical funding considerations.
Then, join the live Q&A session on ABLE Account Creation.
Haven’t enrolled in the Future Care Planning Series? Enroll Today!
Enter your name, email and password: ASF2026
