ASF ECHO Program

ASF ECHO is a virtual, case-based learning program that connects clinicians with Angelman syndrome (AS) experts to expand knowledge and improve care.

Built on the Project ECHO (Extension for Community Healthcare Outcomes) model, this interactive approach helps bridge the gap between specialized expertise and everyday clinical practice, so more individuals with AS can receive informed, high-quality care.

How It Works

Learn from live expert-led presentations on caring for people with Angelman syndrome. Each quarter, a real-world case discussion will allow physicians and specialists to connect with a network of peers. 

Who Should Attend?
  • Physicians and specialists
  • Nurse practitioners and physician assistants
  • Therapists and allied health professionals
  • Any clinician supporting individuals with Angelman syndrome

How To Attend

The ASF Echo Series is for clinicians and specialists that actively work in the medical field. Request to be added to the invitation list to receive session details and registration information. 

Upcoming ASF ECHO Series

Caring for Adults with Angelman Syndrome
As individuals with Angelman syndrome live longer, fuller lives, the need for informed, adult-focused care continues to grow. This first ASF ECHO series focuses on the unique experiences and clinical considerations of adults with AS, helping providers better support this evolving population.

SERIES FACILITATOR
Wilfreda Lindsey, MD
Developmental Neurologist Director, Angelman Syndrome Clinic, Kennedy Krieger Institute

Session 1: Life as an Adult with AS

Monday, May 11, 2026

Session 2: Transitioning from Pediatric to Adult Healthcare

Monday, July 6, 2026

Session 3: Complex Medical Concerns in Adult AS Patients

Monday, November 2, 2026

Session 4: Neurodevelopmental, Psychiatric, and Behavioral Health Considerations

Date: February 1, 2027

ASF ECHO was developed and operates in partnership with clinicians from the ASF Clinic Network.