The mission of the Angelman Syndrome Foundation is to advance the awareness and treatment of Angelman syndrome through education and information, research, and support for individuals with Angelman syndrome, their families and other concerned parties. We exist to give all of them a reason to smile, with the ultimate goal of finding a cure.
ASF is equally committed to each of our four pillars, helping families where they need it most.
ASF is committed to supporting families on their journey through its abundance of resources and programs.
ASF Clinics connects families with experts in treatments for this rare disorder.
ASF has invested more than $15.7 million in AS research to date, supporting projects worldwide in the quest to find treatments and ultimately a cure.
Through our Angelman Strong events and the ASF Family Conference, we bring Angelman families together
The ASF Board of Directors has developed a strategic plan to help the ASF achieve its goals and objectives for the future. The ASF strategic plan is centered around three areas: Support for Angelman families and access to needed resources, Commitment to Research and Supporting the ASF AS Clinics. Focusing funding and energies in these 3 areas will not only improve the lives of those living with Angelman syndrome now and in the future.
The Angelman Syndrome Foundation values diversity, equity and inclusion, recognizing the diverse backgrounds and circumstances of those affected by Angelman syndrome. We’re dedicated to creating a culture of respect, equal opportunities, and support for everyone to participate fully in our mission. We believe that diversity enriches our organization, and we’re committed to continuously educating ourselves and others, seeking out diverse perspectives and taking meaningful action to create a more equitable world.
Members of the Angelman community say what ASF means to them. There is so much hope and so much to look forward to within this community!
Meet the team who gives their time to focus on our mission.
History of Angelman syndrome and ASF.
Want to get involved? This is a great place to start!
Your donation changes lives.
The mission of Angelman Syndrome Foundation is to advance the awareness and treatment of Angelman syndrome through education and information, research and support for individuals with Angelman syndrome, their families and other concerned parties. We exist to give all of them a reason to smile, with the ultimate goal of finding a cure.