Questions? Contact Kathryn Ely kely@angelman.org.
About the ASF Family Fund
The ASF Family Fund was created to provide financial assistance to families supporting individuals with Angelman syndrome. Family members can apply for funds that are needed to improve the quality of life for an individual with Angelman syndrome.
Eligibility for Funding
To be eligible for funding.
- Applicant must be a caregiver (legal guardian, primary caregiver, etc) for an individual diagnosed with Angelman syndrome.
- Request must impact an individual with Angelman syndrome.
- Request cannot be for rent, utilities or moving expenses.Â
- Applicant cannot have received a grant in the last 3 years. Example, if you are awarded during the October 2021 grant cycle, you would not be eligible to apply again until the April 2025 grant cycle.
NOTE: The total requested amount for funding may not be met. There is a funding limit of up to $5,000 per grant award.
Application Tips
- Be specific. If you are applying for an adaptive bike, provide as much information as possible about the exact item you want. For example, the cost, manufacturer and model, link to the item on a website.Â
- Be patient. You will receive a response about your application toward the end of the month.
- Apply for one item. An application should be completed for one item. Please do not include a list of items. This will slow the application process and your approval.
FAQs
Who can apply for the ASF Family Fund?
Any caregiver, parent or legal guardian of an individual with Angelman syndrome.
When does the ASF Family Fund application open?
During odd years, applications are open twice from April 1 – 14 and October 1 – 14.
During even years, applications are open once a year October 1 – 14 to accommodate applications for the ASF Family Conference Scholarship. Family Fund applicants receive a response within 8 weeks of the application deadline.
What documents are needed to submit an application?
You will need to be prepared to submit the following information electronically:
• Formal proof of diagnosis
• Insurance denial for any Durable Medical Equipment (DME), including safety beds and communication devices
• An impact statement of how this grant will benefit and enrich the life of the individual living with AS (200 word minimum)
• Up to three detailed estimates that provide an item description and clearly lists the cost of the item you are applying for
• Specific details of the item you are applying for
What can the ASF Family Fund grant be used to pay for?
You may use the ASF Family Fund grant to pay for anything that would benefit and enrich the life of an individual with AS.
What are the limitations for funding?
- Each grant must be made for a charitable purpose as described in sections 180(c) and 501(c)3 of the Internal Revenue Code.
- The total requested amount for funding is limited to $5,000 per grant award. If your requested item is more than $5,000, you may still apply. If awarded, the ASF Family Fund can reimburse you up to $5,000 toward your requested item.
- Some grants may be funded by reimbursement.
- Applicants can submit only one application at a time.Â
- Recipients for prosthetic appliances, wheelchairs, beds or other forms of physical or educational assistance; necessary travel reimbursements for clinic travel; or other needs that prove to be worthy of funding, provided there are no other funds, public or private, available for the needs of such individuals.
What has the grant been used for by previous individuals with AS?
- Travel expenses to an ASF Clinic or other specialist (Note: ASF legally cannot pay for the actual cost of the visit itself)
- iPad for communication device
- Safety beds (Note: You will have three options to choose from. If you would like something besides what we offer, we can reimburse up to $2,300 for the bed
you select) - DMEs not covered by insurance
- Therapy co-pays not covered by insurance
- Adaptive bikes
Can I use the ASF Family Fund grant to travel to an ASF Clinic or specialist?
Yes! If you would like to use it to cover expenses to travel to an ASF Clinic or specialist, please make sure that you have already contacted the clinic. You will need to ensure they have the ability to see you within six months of the submitted application and that you can cover the cost of the medical visit.
When will we know if we have been selected for a ASF Family Fund grant?
You will be notified via email within 8 weeks of submitting your completed application.
When will the grant need to be used or items ordered?
All items will need to be ordered within three to five months of receiving your grant award. If you will not be able to purchase the items within that time frame, please wait and apply during the next round.
How often can I receive an ASF Family Fund grant?
You may only be awarded a grant once every 3 years. Three years after receiving your grant, you may apply again. Example, if you are awarded during the October 2021 grant cycle, you would not be eligible to apply again until the April 2025 grant cycle.
Thank you to our partners who help fund applications in their respective countries.
