Our Words Matter. People First.
Words are powerful. They shape how we see one another, how we understand difference, and how we treat people in our everyday lives. When it comes to Angelman syndrome and the broader disability community, language plays a meaningful role in shaping perception, expectations, and inclusion. The words we choose can either affirm dignity and humanity or contribute to misunderstanding or harm.
Person-first language centers the individual, recognizing that a diagnosis is only one part of a much fuller, richer human experience. It reminds others that a person is not defined by their diagnosis. A diagnosis is not a personality and does not reflect potential.
Instead of
“Epileptic” – say, “A person with epilepsy”
“Suffers from” – say, “Lives with . . .”
“Non-verbal” – say, “A person who communicates non-verbally” or “A person who uses AAC”
“Low functioning” – say, “A person with significant support needs”
“Normal kids” – say, “Typically developing children”
“Angelman kid” – say, “A person with Angelman syndrome”
Our loved ones with Angelman syndrome are not defined by a diagnosis. They are sons and daughters, siblings and friends. They have favorite songs they light up to, foods they refuse to eat, inside jokes with their families, and routines that bring them comfort. They celebrate birthdays, form deep bonds, love fiercely, and teach us in ways words cannot always capture.
Like all people, individuals with Angelman syndrome deserve respect, meaningful choices, and the opportunity to be known for who they are, not just the medical terms in their chart. Their stories are rich, their personalities distinct, and their impact immeasurable.
ASF’s “Our Words Matter. People First.” reel was created to affirm these values and to encourage reflection. It uses voices of people in the Angelman community and aligns with broader disability-advocacy principles that prioritize dignity, autonomy, and humanity. It serves as a reminder that language is deeply personal, impactful, and worth thoughtful consideration. Listening, learning, and reflecting are all part of building a more inclusive world.
We all have a role to play. Take a moment to reflect on the language you use, approach conversations with intention, and remain open to growth. By speaking with care and compassion, we help create spaces that honor people for who they are. We invite you to watch and share this reel to help spread awareness… because our words truly do matter.
