Find resources you need to navigate your journey with Angelman syndrome. Whether you are newly diagnosed or looking for ongoing support, you’ll find resources to assist every step of the way. Use filters to search by subtopics, life stage, or even location to find information.
Free. Making connections with others in the Angelman community can be very powerful and the ASF Family Champions are available for all of these reasons and more! These fellow AS family members have volunteered to be available to other families to share their knowledge, experience and lend an ear.
Free. Making connections with others in the Angelman community can be very powerful and the ASF Family Champions are available for all of these reasons and more! These fellow AS family members have volunteered to be available to other families to share their knowledge, experience and lend an ear.
COMING MAY 1 – This series will empower you to take the first steps in building a Future Care Plan for your family. Featuring on-demand webinars, interactive resources, and Q&A opportunities. Complete the series to:
COMING MAY 1 – This series will empower you to take the first steps in building a Future Care Plan for your family. Featuring on-demand webinars, interactive resources, and Q&A opportunities. Complete the series to:
Tiny Superheroes created the Angelman Strong Badge as a symbol of strength, identity, and belonging for for the Angelman community. Visit their website to purchase a cape, the Angelman Strong patch, and many others. Use promo code ANGELMANSTRONG for 10% off.
Tiny Superheroes created the Angelman Strong Badge as a symbol of strength, identity, and belonging for for the Angelman community. Visit their website to purchase a cape, the Angelman Strong patch, and many others. Use promo code ANGELMANSTRONG for 10% off.
ASF Educational Webinar Series by Eric Wright. Discusses the concept of guardianship, particularly in the context of planning for individuals who may require assistance in managing their personal and financial affairs. It explores the responsibilities of a guardian, the legal processes involved in establishing guardianship, and considerations for families contemplating this option. The video aims to inform viewers about the implications of guardianship and alternative approaches to support decision-making for those with diminished capacity.
ASF Educational Webinar Series by Eric Wright. Discusses the concept of guardianship, particularly in the context of planning for individuals who may require assistance in managing their personal and financial affairs. It explores the responsibilities of a guardian, the legal processes involved in establishing guardianship, and considerations for families contemplating this option. The video aims to inform viewers about the implications of guardianship and alternative approaches to support decision-making for those with diminished capacity.
The Foundation for Angelman Syndrome Therapeutics (FAST) and the Angelman Syndrome Foundation (ASF) formed a strategic partnership to drive a coordinated, multi-tiered advocacy strategy to improve the lives of those affected by Angelman syndrome.
Both organizations understand the need to ensure key decision makers understand Angelman syndrome to influence and inform policy, legislation, and funding related to AS.
Please consider joining the AS Advocacy movement.
The Foundation for Angelman Syndrome Therapeutics (FAST) and the Angelman Syndrome Foundation (ASF) formed a strategic partnership to drive a coordinated, multi-tiered advocacy strategy to improve the lives of those affected by Angelman syndrome.
Both organizations understand the need to ensure key decision makers understand Angelman syndrome to influence and inform policy, legislation, and funding related to AS.
Please consider joining the AS Advocacy movement.
Fathers discuss everything there is to know about being a dad to a child with Angelman syndrome.
Fathers discuss everything there is to know about being a dad to a child with Angelman syndrome.
Features a collection of videos that delve into the latest scientific research and developments related to Angelman syndrome. The playlist includes presentations from experts in the field, covering topics such as genetic studies, clinical trials, and innovative therapies aimed at understanding and treating Angelman syndrome. This resource serves as a valuable tool for families, caregivers, and professionals seeking to stay informed about advancements in research and the potential implications for individuals affected by Angelman syndrome.
Features a collection of videos that delve into the latest scientific research and developments related to Angelman syndrome. The playlist includes presentations from experts in the field, covering topics such as genetic studies, clinical trials, and innovative therapies aimed at understanding and treating Angelman syndrome. This resource serves as a valuable tool for families, caregivers, and professionals seeking to stay informed about advancements in research and the potential implications for individuals affected by Angelman syndrome.
Angelman Syndrome Foundation hosts a webinar for Angelman caregivers to learn about Angelman syndrome, the research around it and supports that are available to help through the journey. This video is available for those who can’t attend the webinar in person or need a refresh on the information.
Angelman Syndrome Foundation hosts a webinar for Angelman caregivers to learn about Angelman syndrome, the research around it and supports that are available to help through the journey. This video is available for those who can’t attend the webinar in person or need a refresh on the information.
Angelman A to Z is a resource for parents, caregivers, doctors, therapists, teachers and anyone involved in the care of a person with AS. The information comes from tips, anecdotes and discoveries from your experiences. Thank you to all who contributed to the 4th and latest edition that was created in 2020.
Angelman A to Z is created by Alice Evans, mother to Whitney, who is an adult with Angelman syndrome.
Angelman A to Z is a resource for parents, caregivers, doctors, therapists, teachers and anyone involved in the care of a person with AS. The information comes from tips, anecdotes and discoveries from your experiences. Thank you to all who contributed to the 4th and latest edition that was created in 2020.
Angelman A to Z is created by Alice Evans, mother to Whitney, who is an adult with Angelman syndrome.
Amanda Moore discusses AS Clinics and LADDER with Liz Jalazo and Anne Wheeler. This recording is part of the All Things AS series on the last Wednesday of the month on Facebook Live.
Amanda Moore discusses AS Clinics and LADDER with Liz Jalazo and Anne Wheeler. This recording is part of the All Things AS series on the last Wednesday of the month on Facebook Live.
