Find resources you need to navigate your journey with Angelman syndrome. Whether you are newly diagnosed or looking for ongoing support, you’ll find resources to assist every step of the way. Use filters to search by subtopics, life stage, or even location to find information.
The Angelman Syndrome Clinical Care Toolkit has been developed in close collaboration with leading medical professionals through the LADDER Learning Network, researchers, and the ASF. It is based on the most current scientific evidence and clinical experience, providing a trusted resource that can support and empower health-care providers in their care of individuals with Angelman syndrome. Included are:
Overall Standards of Care, Seizure Treatment Guidelines, Management of Nonconvulsive Status Epilepticus, Myoclonus in AS, General Anesthesia Best Practices, Physical Therapy and Occupational Therapy, LADDER Learning Network
The Angelman Syndrome Clinical Care Toolkit has been developed in close collaboration with leading medical professionals through the LADDER Learning Network, researchers, and the ASF. It is based on the most current scientific evidence and clinical experience, providing a trusted resource that can support and empower health-care providers in their care of individuals with Angelman syndrome. Included are:
Overall Standards of Care, Seizure Treatment Guidelines, Management of Nonconvulsive Status Epilepticus, Myoclonus in AS, General Anesthesia Best Practices, Physical Therapy and Occupational Therapy, LADDER Learning Network
Provides clinical recommendations for managing seizures in Angelman Syndrome. It covers first-line treatments like Levetiracetam, Clobazam, and Clonazepam, dietary therapies, seizure rescue medications, and second-line options like Valproate. The guide emphasizes individualized care and monitoring for medication side effects.
Provides clinical recommendations for managing seizures in Angelman Syndrome. It covers first-line treatments like Levetiracetam, Clobazam, and Clonazepam, dietary therapies, seizure rescue medications, and second-line options like Valproate. The guide emphasizes individualized care and monitoring for medication side effects.
The mission of Angelman Syndrome Foundation is to advance the awareness and treatment of Angelman syndrome through education and information, research and support for individuals with Angelman syndrome, their families and other concerned parties. We exist to give all of them a reason to smile, with the ultimate goal of finding a cure.