Resources

Find resources you need to navigate your journey with Angelman syndrome. Whether you are newly diagnosed or looking for ongoing support, you’ll find resources to assist every step of the way. Use filters to search by subtopics, life stage, or even location to find information.

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Communication
Document | Printable | Video | Website
Stepping into AAC

Despite the growing amount of AAC information that is available, parents of children with very limited language struggle to support their children’s communicative development. Stepping Into AAC is a program to support your individual’s communication journey.

Stepping Into AAC

  • Introduces you to Augmentative/Alternative Communication (AAC)
  • Guides you through the early months of using new communication tools and strategies
  • Offers resources to engage school teams and other caregivers

The program is divided into 20 parts with the intention to complete one part a week. There are activities, resources and videos to guide you along the way. Our hope is that you find support and inspiration whether you are just getting started with AAC, seeking momentum or looking to learn more about AAC.

Despite the growing amount of AAC information that is available, parents of children with very limited language struggle to support their children’s communicative development. Stepping Into AAC is a program to support your individual’s communication journey.

Stepping Into AAC

  • Introduces you to Augmentative/Alternative Communication (AAC)
  • Guides you through the early months of using new communication tools and strategies
  • Offers resources to engage school teams and other caregivers

The program is divided into 20 parts with the intention to complete one part a week. There are activities, resources and videos to guide you along the way. Our hope is that you find support and inspiration whether you are just getting started with AAC, seeking momentum or looking to learn more about AAC.

Communication
Video
Angel Voices: Creating a Community of AAC Users

Kate Ahern discusses strategies for fostering a supportive community among users of Augmentative and Alternative Communication (AAC) devices. She emphasizes the importance of creating environments where AAC users can connect, share experiences, and support each other’s communication journeys. The presentation provides insights into building inclusive communities that empower AAC users to express themselves fully.

Kate Ahern discusses strategies for fostering a supportive community among users of Augmentative and Alternative Communication (AAC) devices. She emphasizes the importance of creating environments where AAC users can connect, share experiences, and support each other’s communication journeys. The presentation provides insights into building inclusive communities that empower AAC users to express themselves fully.

Communication
Video
AS Families on the AAC Journey

A panel discussion moderated by Erin Sheldon, MEd, and Stephen Calculator, PhD. Families share their experiences and insights on using Augmentative and Alternative Communication (AAC) systems with individuals who have Angelman Syndrome. The session provides practical advice and strategies for implementing AAC to enhance communication skills.

A panel discussion moderated by Erin Sheldon, MEd, and Stephen Calculator, PhD. Families share their experiences and insights on using Augmentative and Alternative Communication (AAC) systems with individuals who have Angelman Syndrome. The session provides practical advice and strategies for implementing AAC to enhance communication skills.

Communication
Video
Be a Super Core Word Modeler with Proloquo2Go

Jennifer Marden, MA CCC-SLP, discusses strategies for effectively modeling core vocabulary using the Proloquo2Go app. This presentation provides practical guidance for families and professionals to enhance communication skills in individuals with Angelman Syndrome through the use of augmentative and alternative communication (AAC) tools.

Jennifer Marden, MA CCC-SLP, discusses strategies for effectively modeling core vocabulary using the Proloquo2Go app. This presentation provides practical guidance for families and professionals to enhance communication skills in individuals with Angelman Syndrome through the use of augmentative and alternative communication (AAC) tools.

Communication
Video
Communication Basics and Angelman Syndrome

This video discusses the limitations individuals with Angelman syndrome face in expressing themselves solely through body language and emphasizes the importance of assistive technology in enhancing their communication abilities.

This video discusses the limitations individuals with Angelman syndrome face in expressing themselves solely through body language and emphasizes the importance of assistive technology in enhancing their communication abilities.

Communication
Video
Communication Panel

A presentation by Dr. Jessica Duis, a pediatric geneticist at Children’s Hospital Colorado, discussing the importance of early diagnosis and intervention in Angelman syndrome. She emphasizes the role of genetic testing in confirming diagnoses and highlights various therapeutic approaches to manage symptoms and improve quality of life for individuals with Angelman syndrome. Dr. Duis also addresses common challenges faced by patients and families, offering insights into current research and potential future treatments.

A presentation by Dr. Jessica Duis, a pediatric geneticist at Children’s Hospital Colorado, discussing the importance of early diagnosis and intervention in Angelman syndrome. She emphasizes the role of genetic testing in confirming diagnoses and highlights various therapeutic approaches to manage symptoms and improve quality of life for individuals with Angelman syndrome. Dr. Duis also addresses common challenges faced by patients and families, offering insights into current research and potential future treatments.

Communication | School/K-12
Video
Communication Support in the Inclusive Classroom

This video focuses on communication support strategies within inclusive classroom settings. It offers insights and practical approaches to enhance communication for individuals with Angelman Syndrome in educational environments.

This video focuses on communication support strategies within inclusive classroom settings. It offers insights and practical approaches to enhance communication for individuals with Angelman Syndrome in educational environments.

Communication
Document | Printable | Video | Website
Communication Training Series

The ASF Communication Series was created by communication and AAC experts. The information is presented in bite-sized chunks to make it as easy as possible for you to start and stick with the training for the long-term.

The ASF Communication Series was created by communication and AAC experts. The information is presented in bite-sized chunks to make it as easy as possible for you to start and stick with the training for the long-term.

Communication
Video
Implementing Augmentative & Alternative Communication

This session focuses on strategies for effectively implementing Augmentative and Alternative Communication (AAC) systems for individuals with Angelman syndrome. The presentation covers various AAC tools and techniques, emphasizing the importance of personalized communication approaches to enhance interaction and learning. It provides practical guidance for caregivers, educators, and therapists to support the communication development of those with Angelman syndrome.

This session focuses on strategies for effectively implementing Augmentative and Alternative Communication (AAC) systems for individuals with Angelman syndrome. The presentation covers various AAC tools and techniques, emphasizing the importance of personalized communication approaches to enhance interaction and learning. It provides practical guidance for caregivers, educators, and therapists to support the communication development of those with Angelman syndrome.

Communication
Video
Intro & Overview of Core Word AAC Systems

Features Jennifer Marden, MA CCC-SLP, presenting an introduction and overview of core word Augmentative and Alternative Communication (AAC) systems. The presentation focuses on the implementation of core vocabulary in AAC devices and strategies to enhance communication for individuals with Angelman syndrome. It provides insights into selecting appropriate AAC tools and techniques to support effective communication.

Features Jennifer Marden, MA CCC-SLP, presenting an introduction and overview of core word Augmentative and Alternative Communication (AAC) systems. The presentation focuses on the implementation of core vocabulary in AAC devices and strategies to enhance communication for individuals with Angelman syndrome. It provides insights into selecting appropriate AAC tools and techniques to support effective communication.