Provider Registry

The Angelman Syndrome Foundation Provider Referral Program is designed to connect families impacted by Angelman syndrome with valuable community resources, support, and providers treating AS. Whether you’re newly diagnosed or seeking guidance on specific challenges, this program aims to provide families with additional clinicians, therapists, dentists, etc., outside the ASF Clinical Network. Many community providers exist and treat individuals with Angelman syndrome, the ASF hopes to connect families to care when accessing a designated ASF specialty clinic is not possible.

NOTE: The providers and clinics listed here have been recommended by themselves, another provider, or caregivers who have firsthand experience working with them. Please note that the ASF cannot attest to the expertise, quality, or responsiveness of any of these providers. We are sharing these names as options for consideration based on personal recommendations.

  • ASF Provider Referrals are nominated by a caregiver/family, LLN member, or the provider themselves for review.
  • Each ASF Provider Referral application is reviewed by the ASF staff and/or Medical Advisory Board.
  • Each ASF Provider Referral is assessed by an ASF representative every two years to ensure the provider/practice is still operating and in good standing, the provider/practice is actively seeing AS patients, and the affiliation remains mutually beneficial.

Find a Provider

Population
Provider Registry Population
Location
Provider Registry – US States
Type
Provider Registry Type

Providers

Adult | Pediatric
Adult | Pediatric
Clare
Martin, LMSW
On Your Mind Counseling
1101 Kermit Dr. Suite 608,
Nashville, TN,
TN,
37217
Social Work/Family Support
Psychology
Adult | Pediatric
Adult | Pediatric
Clare
Martin, LMSW
On Your Mind Counseling
1101 Kermit Dr. Suite 608,
Nashville, TN,
TN,
37217
Social Work/Family Support
Psychology
Pediatric
Pediatric
Kate
Ahern, M.S.Ed.
AAC Voices
158 Concord Road, Apt G16,
Billerica,
MA,
01821
AAC
Pediatric
Pediatric
Kate
Ahern, M.S.Ed.
AAC Voices
158 Concord Road, Apt G16,
Billerica,
MA,
01821
AAC
Pediatric
Pediatric
ABC Dentistry & Orthodontics
80 W Hillcrest Rd, Suite 212,
Schaumburg,
IL,
60195
Dentist
Pediatric
Pediatric
ABC Dentistry & Orthodontics
80 W Hillcrest Rd, Suite 212,
Schaumburg,
IL,
60195
Dentist
Adult | Pediatric
Adult | Pediatric
Andrea
Lowden, MD, FACNS
The Epilepsy Care Center
400 E John Carpenter Fwy,
Irving,
TX,
75062
Neurologist
Nutritionist
Physical Therapist
Adult | Pediatric
Adult | Pediatric
Andrea
Lowden, MD, FACNS
The Epilepsy Care Center
400 E John Carpenter Fwy,
Irving,
TX,
75062
Neurologist
Nutritionist
Physical Therapist
Adult | Pediatric
Adult | Pediatric
Jackie and Gene Autry Orthopedic Center at Children's Hospital Los Angeles
4650 Sunset Blvd,
Los Angeles,
CA,
90027
Orthopedic Surgeon
Adult | Pediatric
Adult | Pediatric
Jackie and Gene Autry Orthopedic Center at Children's Hospital Los Angeles
4650 Sunset Blvd,
Los Angeles,
CA,
90027
Orthopedic Surgeon

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