Provider Registry

The Angelman Syndrome Foundation Provider Referral Program is designed to connect families impacted by Angelman syndrome with valuable community resources, support, and providers treating AS. Whether you’re newly diagnosed or seeking guidance on specific challenges, this program aims to provide families with additional clinicians, therapists, dentists, etc., outside the ASF Clinical Network. Many community providers exist and treat individuals with Angelman syndrome, the ASF hopes to connect families to care when accessing a designated ASF specialty clinic is not possible.

NOTE: The providers and clinics listed here have been recommended by themselves, another provider, or caregivers who have firsthand experience working with them. Please note that the ASF cannot attest to the expertise, quality, or responsiveness of any of these providers. We are sharing these names as options for consideration based on personal recommendations.

  • ASF Provider Referrals are nominated by a caregiver/family, LLN member, or the provider themselves for review.
  • Each ASF Provider Referral application is reviewed by the ASF staff and/or Medical Advisory Board.
  • Each ASF Provider Referral is assessed by an ASF representative every two years to ensure the provider/practice is still operating and in good standing, the provider/practice is actively seeing AS patients, and the affiliation remains mutually beneficial.

Find a Provider

Population
Provider Registry Population
Location
Provider Registry – US States
Type
Provider Registry Type

Providers

Pediatric
Pediatric
Various
providers
Abilities Pediatric Therapy
4806 Timber Commons Dr,
Sandusky,
OH,
44870
Feeding Therapist
Occupational Therapist
Speech Therapist
Pediatric
Pediatric
Amber
Wright, CPNP
Phoenix Children's Hospital
1919 E Thomas Rd ,
Phoenix,
AZ,
85016
Nurse Practitioner
Pediatric
Pediatric
Andrew
McIntosh, MD
Orange County Pediatric
30131 Town Center Dr,
Laguna Niguel,
CA,
92677
Neurologist
Pediatric
Pediatric
Barry
Allen, MD
Lowell Medical Center
325 S 6th Pl,
Lowell,
AR,
72765
Pediatrician
Pediatric
Pediatric
Bearden Pediatric Dentistry
601 S Concord St #102,
Knoxville,
TN,
37919
Dentist