Features Dr. Elizabeth Jalazo and Kathryn Ely discussing the initial steps and considerations for families during the first 100 days after an Angelman syndrome diagnosis. They provide guidance on understanding the condition, connecting with support networks, and proactively managing the challenges that may arise. This resource aims to empower families with knowledge and strategies to navigate the early stages following a diagnosis.
The mission of Angelman Syndrome Foundation is to advance the awareness and treatment of Angelman syndrome through education and information, research and support for individuals with Angelman syndrome, their families and other concerned parties. We exist to give all of them a reason to smile, with the ultimate goal of finding a cure.