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Contact Registry

The ASF has been supporting families for over 30 years while funding the research that has made the biggest strides toward a cure for Angelman syndrome.

The best way to stay up to date on resources, programs, events and research is to complete our contact registry form. 
  • If your address or any information has changed, complete the form so we can update our records.
  • You will receive emails about programs, research updates and events.
  • If you have recently received a diagnosis, you will receive a packet of information about how and where to begin your journey.
* Please carefully read the statement above. You must agree to the statement to be able to proceed with completing the contact registry.

Spouse / Partner Information

Contact me

Newly Diagnosed

Individual with AS

Individual with AS #2

Individual with AS #3

Individual with AS #4

Contact Registry

The ASF has been supporting families for over 30 years while funding the research that has made the biggest strides toward a cure for Angelman syndrome. The best way to stay up to date on resources, programs, events and research is to complete our contact registry form.

If your address or any information has changed, complete the form so we can update our records.

You will receive emails about programs, research updates and events. If you have recently received a diagnosis, you will receive a packet of information about how and where to begin your journey.

Sibling

Sibling #2

Sibling #3

Sibling #4

Thank you for completing the ASF Contact Registry.

If you indicated that your child was recently diagnosed with Angelman syndrome, you will be receiving information at the email you entered on the form. Next, please consider enrolling in LADDER. The LADDER database creates a higher level of understanding of AS which increases the potential for future discoveries that will lead to clinical trials and treatments. Learn more and enroll in LADDER.   If you have any questions or need help with anything, feel free to call our office at 800-432-6435 or email info@angelman.org.

With kind regards, Angelman Syndrome Foundation

Angelman Syndrome Foundation
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The mission of Angelman Syndrome Foundation is to advance the awareness and treatment of Angelman syndrome through education and information, research and support for individuals with Angelman syndrome, their families and other concerned parties. We exist to give all of them a reason to smile, with the ultimate goal of finding a cure.

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