Find resources you need to navigate your journey with Angelman syndrome. Whether you are newly diagnosed or looking for ongoing support, you’ll find resources to assist every step of the way. Use filters to search by subtopics, life stage, or even location to find information.
Session at the 2019 ASF Family Conference. Presenters: Jessica Duis, MD, Mark Nespeca, MD and Ron Thibert, DO, MsPH discuss various symptoms of AS that are common at different times through the lifespan.
Session at the 2019 ASF Family Conference. Presenters: Jessica Duis, MD, Mark Nespeca, MD and Ron Thibert, DO, MsPH discuss various symptoms of AS that are common at different times through the lifespan.
Amanda Moore discusses AS Clinics and LADDER with Liz Jalazo and Anne Wheeler. This recording is part of the All Things AS series on the last Wednesday of the month on Facebook Live.
Amanda Moore discusses AS Clinics and LADDER with Liz Jalazo and Anne Wheeler. This recording is part of the All Things AS series on the last Wednesday of the month on Facebook Live.
Dr. Jessica Duis discusses the comprehensive care provided at the Children’s Hospital Colorado’s Chromosome 15 and Related Disorders Clinic, recognized as an ASF Center of Excellence. The center offers multidisciplinary care, including neurology, physical and speech therapy, and epilepsy treatment, while serving as a medical home for families. It focuses on education, clinical trials, and research to improve treatment and understanding of Angelman syndrome.
Dr. Jessica Duis discusses the comprehensive care provided at the Children’s Hospital Colorado’s Chromosome 15 and Related Disorders Clinic, recognized as an ASF Center of Excellence. The center offers multidisciplinary care, including neurology, physical and speech therapy, and epilepsy treatment, while serving as a medical home for families. It focuses on education, clinical trials, and research to improve treatment and understanding of Angelman syndrome.
Featuring leading physicians specializing in Angelman syndrome. In this session, they share their clinical experiences and discuss best practices in treating individuals with Angelman syndrome. The panel addresses various topics, including recent advancements in research, therapeutic interventions, and strategies to manage common challenges associated with the condition. This discussion provides valuable insights for caregivers, families, and healthcare professionals involved in the care of individuals with Angelman syndrome.
Featuring leading physicians specializing in Angelman syndrome. In this session, they share their clinical experiences and discuss best practices in treating individuals with Angelman syndrome. The panel addresses various topics, including recent advancements in research, therapeutic interventions, and strategies to manage common challenges associated with the condition. This discussion provides valuable insights for caregivers, families, and healthcare professionals involved in the care of individuals with Angelman syndrome.
ASF Educational Webinar – Dr. Justin Grill, DO, MHA, M.EdHp, discusses issues that involve individuals with AS and their interaction with the emergency department. He discusses strategies to make the best of a stay in the ER and specific intervention information on topics such as trauma, toxicology (poisonings), and fevers.
ASF Educational Webinar – Dr. Justin Grill, DO, MHA, M.EdHp, discusses issues that involve individuals with AS and their interaction with the emergency department. He discusses strategies to make the best of a stay in the ER and specific intervention information on topics such as trauma, toxicology (poisonings), and fevers.
People with Angelman syndrome often experience GI and digestive issues from infancy to adulthood. This session will help attendees understand the link between neurodevelopmental delays and the gut microbiome, as well as cover management and treatment for the most commonly observed GI issues in Angelman syndrome, such as constipation, gastroesophageal reflux, and abdominal pain, along with the less commonly reported issue of cyclical vomiting episodes and aspiration events, including prevention and treatment strategies.
People with Angelman syndrome often experience GI and digestive issues from infancy to adulthood. This session will help attendees understand the link between neurodevelopmental delays and the gut microbiome, as well as cover management and treatment for the most commonly observed GI issues in Angelman syndrome, such as constipation, gastroesophageal reflux, and abdominal pain, along with the less commonly reported issue of cyclical vomiting episodes and aspiration events, including prevention and treatment strategies.
Eric Wright discusses insurance and government benefits, understanding coverage, appealing denials, accessing necessary therapies, and more.
Eric Wright discusses insurance and government benefits, understanding coverage, appealing denials, accessing necessary therapies, and more.
