Find resources you need to navigate your journey with Angelman syndrome. Whether you are newly diagnosed or looking for ongoing support, you’ll find resources to assist every step of the way. Use filters to search by subtopics, life stage, or even location to find information.
Friends with Wings is for siblings, friends of siblings, cousins, friends, classmates, neighbors, nieces/nephews who are 18 and younger. Friends meet to have fun, share stories and learn about Angelman syndrome. Friends receive a t-shirt, participate in contests and learn how to have a voice for their friend with Angelman syndrome.
Friends with Wings is for siblings, friends of siblings, cousins, friends, classmates, neighbors, nieces/nephews who are 18 and younger. Friends meet to have fun, share stories and learn about Angelman syndrome. Friends receive a t-shirt, participate in contests and learn how to have a voice for their friend with Angelman syndrome.
This session focuses on the experiences and challenges faced by siblings of individuals with developmental disabilities, particularly Angelman syndrome. The discussion aims to provide insights and strategies to support siblings in their unique roles within the family dynamic.
This session focuses on the experiences and challenges faced by siblings of individuals with developmental disabilities, particularly Angelman syndrome. The discussion aims to provide insights and strategies to support siblings in their unique roles within the family dynamic.
In Episode 3, ASF CEO Amanda Moore interviews a special guest! Her 7-year-old son Baden explains first-hand what it’s like being a twin sibling to his brother Jackson, who has AS.
In Episode 3, ASF CEO Amanda Moore interviews a special guest! Her 7-year-old son Baden explains first-hand what it’s like being a twin sibling to his brother Jackson, who has AS.
Having a sibling with Angelman syndrome can often bring many questions, challenges, fears and more. Listen to a panel of siblings talk through these questions and give support, guidance and encouragement. This is a great session for you to watch as a family to encourage open dialogue at your home. Panelists: Kathryn Ely – Moderator, Lesley McCallister, Drew Wilkerson, Alex Jamieson, Amber Rippy and Michelle Harvey-Martin, M.Ed, BCBA.
Having a sibling with Angelman syndrome can often bring many questions, challenges, fears and more. Listen to a panel of siblings talk through these questions and give support, guidance and encouragement. This is a great session for you to watch as a family to encourage open dialogue at your home. Panelists: Kathryn Ely – Moderator, Lesley McCallister, Drew Wilkerson, Alex Jamieson, Amber Rippy and Michelle Harvey-Martin, M.Ed, BCBA.
The DEE-P Connections website offers a request form for Parent and Sibling Kits, designed to support families with a child diagnosed with a rare epilepsy. These kits provide resources and materials tailored for parents and siblings to help them understand and manage the challenges associated with rare epilepsies. Families are encouraged to join the DEE-P Family Community to access these kits. Currently, the program is available to U.S. residents, with many kit contents also accessible for download online.
The DEE-P Connections website offers a request form for Parent and Sibling Kits, designed to support families with a child diagnosed with a rare epilepsy. These kits provide resources and materials tailored for parents and siblings to help them understand and manage the challenges associated with rare epilepsies. Families are encouraged to join the DEE-P Family Community to access these kits. Currently, the program is available to U.S. residents, with many kit contents also accessible for download online.
Sandy Feet Initiative is a nonprofit organization that recognizes, supports, and creates a community for the siblings of children with special needs, disabilities, and chronic illnesses. They offer beach-based programs, including weeklong and after-school camps, where siblings can learn, have fun, and connect with others who share similar experiences. Activities include yoga, surfing, boogie boarding, beach clean-up, and open discussions about their shared experiences.
Sandy Feet Initiative is a nonprofit organization that recognizes, supports, and creates a community for the siblings of children with special needs, disabilities, and chronic illnesses. They offer beach-based programs, including weeklong and after-school camps, where siblings can learn, have fun, and connect with others who share similar experiences. Activities include yoga, surfing, boogie boarding, beach clean-up, and open discussions about their shared experiences.
Siblings of children with rare disease are in a unique role. Our series, Siblings Stories, highlights that role using real and fictional stories to discuss the dynamic aspects of being a sibling to a child with Angelman syndrome. We hope that siblings connect with these characters and find community in each story – and share these with their classmates, friends, and family!
Siblings of children with rare disease are in a unique role. Our series, Siblings Stories, highlights that role using real and fictional stories to discuss the dynamic aspects of being a sibling to a child with Angelman syndrome. We hope that siblings connect with these characters and find community in each story – and share these with their classmates, friends, and family!