Resources

Find resources you need to navigate your journey with Angelman syndrome. Whether you are newly diagnosed or looking for ongoing support, you’ll find resources to assist every step of the way. Use filters to search by subtopics, life stage, or even location to find information.

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Resources

Communication
Video
Angel Voices: Creating a Community of AAC Users

Kate Ahern discusses strategies for fostering a supportive community among users of Augmentative and Alternative Communication (AAC) devices. She emphasizes the importance of creating environments where AAC users can connect, share experiences, and support each other’s communication journeys. The presentation provides insights into building inclusive communities that empower AAC users to express themselves fully.

Kate Ahern discusses strategies for fostering a supportive community among users of Augmentative and Alternative Communication (AAC) devices. She emphasizes the importance of creating environments where AAC users can connect, share experiences, and support each other’s communication journeys. The presentation provides insights into building inclusive communities that empower AAC users to express themselves fully.

Communication | School/K-12
Document
Angelman syndrome for Educators

Angelman Syndrome for Educators is a guide written by Erin Sheldon, M.Ed, for school teams to assist with planning for students with AS.

Angelman Syndrome for Educators is a guide written by Erin Sheldon, M.Ed, for school teams to assist with planning for students with AS.

Communication
Video
AS Families on the AAC Journey

A panel discussion moderated by Erin Sheldon, MEd, and Stephen Calculator, PhD. Families share their experiences and insights on using Augmentative and Alternative Communication (AAC) systems with individuals who have Angelman Syndrome. The session provides practical advice and strategies for implementing AAC to enhance communication skills.

A panel discussion moderated by Erin Sheldon, MEd, and Stephen Calculator, PhD. Families share their experiences and insights on using Augmentative and Alternative Communication (AAC) systems with individuals who have Angelman Syndrome. The session provides practical advice and strategies for implementing AAC to enhance communication skills.

Communication
Video
Be a Super Core Word Modeler with Proloquo2Go

Jennifer Marden, MA CCC-SLP, discusses strategies for effectively modeling core vocabulary using the Proloquo2Go app. This presentation provides practical guidance for families and professionals to enhance communication skills in individuals with Angelman Syndrome through the use of augmentative and alternative communication (AAC) tools.

Jennifer Marden, MA CCC-SLP, discusses strategies for effectively modeling core vocabulary using the Proloquo2Go app. This presentation provides practical guidance for families and professionals to enhance communication skills in individuals with Angelman Syndrome through the use of augmentative and alternative communication (AAC) tools.

Communication
Video
Communication Basics and Angelman Syndrome

This video discusses the limitations individuals with Angelman syndrome face in expressing themselves solely through body language and emphasizes the importance of assistive technology in enhancing their communication abilities.

This video discusses the limitations individuals with Angelman syndrome face in expressing themselves solely through body language and emphasizes the importance of assistive technology in enhancing their communication abilities.

Communication
Video
Communication Panel

A presentation by Dr. Jessica Duis, a pediatric geneticist at Children’s Hospital Colorado, discussing the importance of early diagnosis and intervention in Angelman syndrome. She emphasizes the role of genetic testing in confirming diagnoses and highlights various therapeutic approaches to manage symptoms and improve quality of life for individuals with Angelman syndrome. Dr. Duis also addresses common challenges faced by patients and families, offering insights into current research and potential future treatments.

A presentation by Dr. Jessica Duis, a pediatric geneticist at Children’s Hospital Colorado, discussing the importance of early diagnosis and intervention in Angelman syndrome. She emphasizes the role of genetic testing in confirming diagnoses and highlights various therapeutic approaches to manage symptoms and improve quality of life for individuals with Angelman syndrome. Dr. Duis also addresses common challenges faced by patients and families, offering insights into current research and potential future treatments.

Communication
Group
Communication Private Facebook Group

The ASF Communication and AAC for Individuals with AS Facebook group is a community designed to support parents, caregivers, teachers, and friends of individuals with Angelman Syndrome. The group aims to share information and resources related to communication strategies and augmentative and alternative communication (AAC) tools to enhance the communication abilities of those with Angelman Syndrome.

The ASF Communication and AAC for Individuals with AS Facebook group is a community designed to support parents, caregivers, teachers, and friends of individuals with Angelman Syndrome. The group aims to share information and resources related to communication strategies and augmentative and alternative communication (AAC) tools to enhance the communication abilities of those with Angelman Syndrome.