Resources

Find resources you need to navigate your journey with Angelman syndrome. Whether you are newly diagnosed or looking for ongoing support, you’ll find resources to assist every step of the way. Use filters to search by subtopics, life stage, or even location to find information.

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Resources

Adults
Group
Adult Siblings

Connect with other siblings, learn about available resources, hear from experts and discuss plans for long-term care for your sibling with Angelman syndrome.

There is a special relationship between individuals with AS and their siblings. It can be loving and carefree, and at other times frustrating and overwhelming. Siblings are the future caretakers of their siblings and it’s a very important role that requires support and lots of planning.

Connect with other siblings, learn about available resources, hear from experts and discuss plans for long-term care for your sibling with Angelman syndrome.

There is a special relationship between individuals with AS and their siblings. It can be loving and carefree, and at other times frustrating and overwhelming. Siblings are the future caretakers of their siblings and it’s a very important role that requires support and lots of planning.

School/K-12 | Family Support
Group
Friends With Wings Sibling Group

Friends with Wings is for siblings, friends of siblings, cousins, friends, classmates, neighbors, nieces/nephews who are 18 and younger. Friends meet to have fun, share stories and learn about Angelman syndrome. Friends receive a t-shirt, participate in contests and learn how to have a voice for their friend with Angelman syndrome.

Friends with Wings is for siblings, friends of siblings, cousins, friends, classmates, neighbors, nieces/nephews who are 18 and younger. Friends meet to have fun, share stories and learn about Angelman syndrome. Friends receive a t-shirt, participate in contests and learn how to have a voice for their friend with Angelman syndrome.

Family Support
Group
Sandy Feet Initiative

Sandy Feet Initiative is a nonprofit organization that recognizes, supports, and creates a community for the siblings of children with special needs, disabilities, and chronic illnesses. They offer beach-based programs, including weeklong and after-school camps, where siblings can learn, have fun, and connect with others who share similar experiences. Activities include yoga, surfing, boogie boarding, beach clean-up, and open discussions about their shared experiences.

Sandy Feet Initiative is a nonprofit organization that recognizes, supports, and creates a community for the siblings of children with special needs, disabilities, and chronic illnesses. They offer beach-based programs, including weeklong and after-school camps, where siblings can learn, have fun, and connect with others who share similar experiences. Activities include yoga, surfing, boogie boarding, beach clean-up, and open discussions about their shared experiences.

Family Support
Group
Sibling Support Project

The Sibling Support Project is a national program dedicated to addressing the lifelong concerns of siblings of individuals with developmental, health, and mental health challenges. It is renowned for initiating Sibshops—engaging peer support groups designed for school-age siblings of children with special needs. The project offers training, resources, and support to communities aiming to implement these programs, fostering a network that acknowledges and supports the unique experiences of these siblings.

The Sibling Support Project is a national program dedicated to addressing the lifelong concerns of siblings of individuals with developmental, health, and mental health challenges. It is renowned for initiating Sibshops—engaging peer support groups designed for school-age siblings of children with special needs. The project offers training, resources, and support to communities aiming to implement these programs, fostering a network that acknowledges and supports the unique experiences of these siblings.

Family Support
Group
Sibling Support Project Argentina

Argentina

The Sibling Support Project provides resources, programs, and a supportive community for siblings of individuals with disabilities. This page highlights efforts to connect, educate, and advocate for siblings, offering peer support, workshops, and networking opportunities to help them navigate their unique experiences.

Argentina

The Sibling Support Project provides resources, programs, and a supportive community for siblings of individuals with disabilities. This page highlights efforts to connect, educate, and advocate for siblings, offering peer support, workshops, and networking opportunities to help them navigate their unique experiences.