Events

Throughout the year, the Angelman Syndrome Foundation hosts, participates in and receives support from events across the country. Below find a list of upcoming events.

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Upcoming Events

Jul
21
Mon
ASF/Dup15q Alliance Research Symposium
July 21, 2025
- July 23, 2025
Indianapolis, IN

The annual research symposium is a chance for leading researchers, scientists and doctors to discuss the latest research in the world of AS.

Nov
16
Sun
Princesses & Superheroes Event
November 16, 2025
11:00 am
Newport, KY

Take pictures and interact with 12 of your favorite superheroes and princesses. Stay for food and a DJ dance party AND magic show.

Dec
03
Wed
Giving Tuesday
December 3, 2025

On this global day of doing good, consider donating, creating an online fundraiser, random acts of kindness or sharing your time through volunteerism. This year, Giving Tuesday donations to the ASF will be matched up to $50,000! Help us raise $100,000 in one day.

 

Feb
15
Sun
International Angelman Day
February 15, 2026

Since 2013, International Angelman Day has been the driving force in uniting AS families and patient organizations around the world for a common purpose – raising awareness of Angelman syndrome. The day is observed by over 50 charitable/support organizations based in over 40 countries around the world.

Mar
02
Mon
Congressional Advocacy Day
March 2, 2026
- March 3, 2026
Washington, DC

Angelman syndrome advocates from around the United States meet in Washington, D.C. on Angelman Syndrome Congressional Advocacy Day. Advocates representing their states meet with their Members of Congress to educate their representatives on their personal experiences with Angelman syndrome to accomplish one of our inaugural goals of building relationships and bringing awareness to AS.

Previous Events

Oct
12
Sun
Bank of America Chicago Marathon 2025
October 12, 2025
Chicago, IL

Support the Windy City Angels running in the Bank of America Chicago Marathon!
*Our 2025 team is now filled.

Oct
09
Thu
Community Webinar with MavriX Bio
October 9, 2025
1:00 pm

ASF and FAST will host a webinar with representatives from MavriX Bio to provide a summary of their Phase 1/2 Clinical Trial (ASCEND-AS) design, requirements, and enrollment criteria.

Oct
01
Wed
Hope Month at Sloomoo Institute
October 1, 2025
- October 31, 2025

Through October, Sloomoo Institute is donating profits from their cloud slime, Hope, to ASF.

Oct
01
Wed
Family Conference Scholarship & Family Fund Applications Open
October 1, 2025
- October 14, 2025
Two grants. One application window!  Apply for a scholarship that covers registration & standard lodging for the 2026 ASF Family Conference. Or Apply for assistance for resources that can improve the quality of life for your individual with AS.
Sep
25
Thu
Angelman Strong Interest Webinar
September 25, 2025
8:00 pm
Are you interested in coordinating an Angelman Strong Event in your area?  Join us to learn how to get started, ask questions and find out how we can support you.

Your donation strengthens the Angelman community.