With you
for the journey

Angelman syndrome (AS) is a rare neuro‑developmental disorder that affects one in 15,000 people. Our mission is to advance the awareness and treatment of AS with the ultimate goal of finding a cure.

Wherever you are on your journey

You are not alone

If you’re overwhelmed by a new diagnosis, you’ve come to the right place.

Adulthood brings new rewards and challenges. Find resources here.

Find resources and programs to make your journey easier and more informed.

Explore ways you can contribute to the ASF mission & connect with others in the Angelman community.

Angelman Syndrome Foundation

Supporting Angelman Families for more than 30 years

The Angelman Syndrome Foundation (ASF) is committed to supporting families when and where they need it most.

a rare neuro-genetic disorder

What is Angelman Syndrome?

Angelman syndrome is a rare neuro‑developmental disorder that affects one in 15,000 people or 500,000 people worldwide.

Angelman syndrome shares symptoms and characteristics with other disorders including autism, cerebral palsy and Prader-Willi syndrome. Due to the common characteristics, misdiagnosis occurs often.

Where Science Meets Support

Advancing Global Care Together

Research Investment Since 1996
$ 0 M*
Approved for funding in FY2023 & Beyond**
$ 0 K
ASF Clinics Exist Worldwide
0
Provided Directly to Families in 2023
$ 0 K+
*Cumulative research investment: $15,773,906.
**Total includes first- and second-year grants from current and/or prior year funding rounds. Full award amount is not fully expensed during a fiscal year if the study is multi-years.
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