PANDAbox: Early Development in Angelman Syndrome
Telehealth Study on Early Development in Angelman Syndrome at Purdue University
The Purdue University Neurodevelopmental Family Lab is recruiting families of children with Angelman syndrome 24 months old and under. This study aims to improve understanding of how children with Angelman syndrome develop in early childhood, and be able to predict and optimize outcomes for individual children.
Study activities are completed from home and participation involves: online survey/phone interview/day-long recording of your child’s vocalizations/play-based telehealth session with Purdue researcher.
Families can receive up to $165 in Amazon gift cards.
Participant Requirements
- Have a child diagnosed with AS who is 24 months old and under
- Family is willing to provide a copy of genetic or medical records verifying AS diagnosis
- Primary language spoken at home is English and live in the US
- Be willing to complete activities at home 3 times, 6 months apart
Questions and How to Join
To participate or get more information about this study, contact: kelleherlab@purdue.edu
The Angelman Syndrome Foundation does not endorse any clinical trial or study, but provides information to the AS community for its own consideration.