August 2, 2023

Clinical Care Tool Kit

Clinical Care Tool Kit. This comprehensive document combines several resources for caregivers and clinicians into one document. Included are:  Overall Standards of Care, Seizure Treatment Guidelines, Management of Nonconvulsive Status Epilepticus, General Anesthesia Best Practices, Myoclonus in AS, Physical Therapy and Occupational Therapy, LADDER Learning Network

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February 21, 2022

Standards of Care for Angelman Syndrome

The Standards of Care for Angelman Syndrome was published in 2022. This collaborative project documents common issues that accompany AS and the most common and established ways of providing care for the issues. 

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January 26, 2022

State Insurance Guide

The ASF State Insurance Resource Guide is a state-by-state list of insurance  information about government agencies, waivers, contact information and more. 

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January 10, 2022

Emergency Medical Webinar

Webinar: Emergency Medical Considerations for Individuals with AS. Justin Grill, DO, MHA, M.EdHp, discusses issues that involve individuals with AS and their interaction with the emergency department. He discusses strategies to make the best of a visit to the ER […]

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January 10, 2022

General Anesthesia

Prepare your Individual with AS for General Anesthesia. Prepared by anesthesiologists who work with patients with AS, this guide will inform you about what to expect and how to prepare for your individual to undergo anesthesia. 

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