Find resources you need to navigate your journey with Angelman syndrome. Whether you are newly diagnosed or looking for ongoing support, you’ll find resources to assist every step of the way. Use filters to search by subtopics, life stage, or even location to find information.
ASF gives families a place to begin—offering support, reassurance, and real-life examples that show what is possible. We offer ideas that are already tested by others, families don’t have to start from scratch when planning for the future.
Adult Housing Champions are caregivers who have navigated one of these situations for their loved one and are available to guide and share their experience with others.
ASF gives families a place to begin—offering support, reassurance, and real-life examples that show what is possible. We offer ideas that are already tested by others, families don’t have to start from scratch when planning for the future.
Adult Housing Champions are caregivers who have navigated one of these situations for their loved one and are available to guide and share their experience with others.
A collection of videos focusing on various aspects of life for adults with Angelman syndrome. The playlist includes expert discussions on topics such as health management, independent living, employment opportunities, and social engagement for adults with Angelman syndrome. The series aims to provide valuable insights and resources for caregivers, families, and individuals seeking to enhance the quality of life for adults affected by this condition.
A collection of videos focusing on various aspects of life for adults with Angelman syndrome. The playlist includes expert discussions on topics such as health management, independent living, employment opportunities, and social engagement for adults with Angelman syndrome. The series aims to provide valuable insights and resources for caregivers, families, and individuals seeking to enhance the quality of life for adults affected by this condition.
Introducing AS Grows Up
In January 2025, ASF published an Adult Survey. Caregivers and family members of adults with AS shared their realities including: their victories, challenges, and urgent gaps in resources and support. Now, we are taking bold action to close the gaps in essential support and expand the vital resources and services families desperately need.
Introducing AS Grows Up
In January 2025, ASF published an Adult Survey. Caregivers and family members of adults with AS shared their realities including: their victories, challenges, and urgent gaps in resources and support. Now, we are taking bold action to close the gaps in essential support and expand the vital resources and services families desperately need.
Free. Application is open twice yearly, during April and October. Families apply for funds to assist in gaining access to resources that are needed to improve the quality of life for an individual with Angelman Syndrome.
Free. Application is open twice yearly, during April and October. Families apply for funds to assist in gaining access to resources that are needed to improve the quality of life for an individual with Angelman Syndrome.
In this presentation Mary Anne Ehlert, CFP will help you identify the goals you want to achieve and the dangers you’ll want to avoid. Along with building your team of professionals/caretakers to help you along the way. We will develop the foundation for your families own personal Future Care Plan™. Some topics of discussion include How to create a map of the future; How to prepare legally and financially; Transition; Education; Employment/ Day programs; Housing; Medical; and building a lifelong support network.
In this presentation Mary Anne Ehlert, CFP will help you identify the goals you want to achieve and the dangers you’ll want to avoid. Along with building your team of professionals/caretakers to help you along the way. We will develop the foundation for your families own personal Future Care Plan™. Some topics of discussion include How to create a map of the future; How to prepare legally and financially; Transition; Education; Employment/ Day programs; Housing; Medical; and building a lifelong support network.
How to incorporate and maximize government benefits…when to apply and what are the rules? Also, SSI/Medicare, SSDI and Medicaid – What happens to benefits as parents retire and later pass away. The maze of government benefits can be overwhelming. Let’s take one step at a time so that you can apply for those benefits you are eligible for and become aware of what might change in the future. Families can play a big part in government benefits, and we might not even know it. Learn about the impact our parents, our spouses, and/or our children might have on our available government money.
How to incorporate and maximize government benefits…when to apply and what are the rules? Also, SSI/Medicare, SSDI and Medicaid – What happens to benefits as parents retire and later pass away. The maze of government benefits can be overwhelming. Let’s take one step at a time so that you can apply for those benefits you are eligible for and become aware of what might change in the future. Families can play a big part in government benefits, and we might not even know it. Learn about the impact our parents, our spouses, and/or our children might have on our available government money.
Mary Anne Ehlert, CFP goes over all the Legal Documents needed to Support the Life Plan and Legal Guardianship and Conservatorship as well as Special Needs wills/trust, both first party and 3rd party. – In Simple Terms Putting together legal documents is confusing. Legal “talk” sometimes intimidates us. But the real concepts are simple, and knowing what the legal “talk” means, how it applies to you and your family, and what you really need, is so important to the big picture of the future.
Mary Anne Ehlert, CFP goes over all the Legal Documents needed to Support the Life Plan and Legal Guardianship and Conservatorship as well as Special Needs wills/trust, both first party and 3rd party. – In Simple Terms Putting together legal documents is confusing. Legal “talk” sometimes intimidates us. But the real concepts are simple, and knowing what the legal “talk” means, how it applies to you and your family, and what you really need, is so important to the big picture of the future.
The mission of Angelman Syndrome Foundation is to advance the awareness and treatment of Angelman syndrome through education and information, research and support for individuals with Angelman syndrome, their families and other concerned parties. We exist to give all of them a reason to smile, with the ultimate goal of finding a cure.