Find resources you need to navigate your journey with Angelman syndrome. Whether you are newly diagnosed or looking for ongoing support, you’ll find resources to assist every step of the way. Use filters to search by subtopics, life stage, or even location to find information.
Introducing AS Grows Up
In January 2025, ASF published an Adult Survey. Caregivers and family members of adults with AS shared their realities including: their victories, challenges, and urgent gaps in resources and support. Now, we are taking bold action to close the gaps in essential support and expand the vital resources and services families desperately need.
Introducing AS Grows Up
In January 2025, ASF published an Adult Survey. Caregivers and family members of adults with AS shared their realities including: their victories, challenges, and urgent gaps in resources and support. Now, we are taking bold action to close the gaps in essential support and expand the vital resources and services families desperately need.
ASF gives families a place to begin—offering support, reassurance, and real-life examples that show what is possible. We offer ideas that are already tested by others, families don’t have to start from scratch when planning for the future.
Adult Housing Champions are caregivers who have navigated one of these situations for their loved one and are available to guide and share their experience with others.
ASF gives families a place to begin—offering support, reassurance, and real-life examples that show what is possible. We offer ideas that are already tested by others, families don’t have to start from scratch when planning for the future.
Adult Housing Champions are caregivers who have navigated one of these situations for their loved one and are available to guide and share their experience with others.
A collection of videos focusing on various aspects of life for adults with Angelman syndrome. The playlist includes expert discussions on topics such as health management, independent living, employment opportunities, and social engagement for adults with Angelman syndrome. The series aims to provide valuable insights and resources for caregivers, families, and individuals seeking to enhance the quality of life for adults affected by this condition.
A collection of videos focusing on various aspects of life for adults with Angelman syndrome. The playlist includes expert discussions on topics such as health management, independent living, employment opportunities, and social engagement for adults with Angelman syndrome. The series aims to provide valuable insights and resources for caregivers, families, and individuals seeking to enhance the quality of life for adults affected by this condition.
Free. Families apply for funds to assist in gaining access to resources that are needed to improve the quality of life for an individual with Angelman syndrome.
Free. Families apply for funds to assist in gaining access to resources that are needed to improve the quality of life for an individual with Angelman syndrome.
Financial planner MaryAnne Ehlert discusses strategies for families with special needs members. She emphasizes the importance of creating a comprehensive plan that addresses financial security, legal considerations, and future care needs. Ehlert provides insights into establishing special needs trusts, guardianship arrangements, and government benefit optimization. The presentation aims to equip families with the knowledge to make informed decisions and ensure long-term support for their loved ones with disabilities.
Financial planner MaryAnne Ehlert discusses strategies for families with special needs members. She emphasizes the importance of creating a comprehensive plan that addresses financial security, legal considerations, and future care needs. Ehlert provides insights into establishing special needs trusts, guardianship arrangements, and government benefit optimization. The presentation aims to equip families with the knowledge to make informed decisions and ensure long-term support for their loved ones with disabilities.
These resources aim to assist families and caregivers in navigating financial planning and understanding government benefits for individuals with special needs.
These resources aim to assist families and caregivers in navigating financial planning and understanding government benefits for individuals with special needs.
Mass Mutual’s Head of SpecialCare, Kelly Piacenti ChSNC®, discusses how to plan for the future needs of dependents with special needs. Future considerations covered include medical, educational, employment, housing, travel, transportation, social, recreational, and skill development.
Mass Mutual’s Head of SpecialCare, Kelly Piacenti ChSNC®, discusses how to plan for the future needs of dependents with special needs. Future considerations covered include medical, educational, employment, housing, travel, transportation, social, recreational, and skill development.
A guide by Lizzie Sordia provides essential information on obtaining medical equipment and supplies for individuals with Angelman syndrome through insurance or Medicaid. It outlines the steps to secure coverage, including obtaining a prescription from a doctor, writing a Letter of Medical Necessity, and working with a Durable Medical Equipment (DME) provider. The guide lists commonly covered equipment such as wheelchairs, incontinence products, communication devices, bath chairs, and orthotics. It also offers guidance on appealing insurance denials and finding alternative funding sources if coverage is denied.
A guide by Lizzie Sordia provides essential information on obtaining medical equipment and supplies for individuals with Angelman syndrome through insurance or Medicaid. It outlines the steps to secure coverage, including obtaining a prescription from a doctor, writing a Letter of Medical Necessity, and working with a Durable Medical Equipment (DME) provider. The guide lists commonly covered equipment such as wheelchairs, incontinence products, communication devices, bath chairs, and orthotics. It also offers guidance on appealing insurance denials and finding alternative funding sources if coverage is denied.
ABLE Today presents Intro to ABLE webinar series. Join experts to learn about ABLE Accounts. A 30 minute presentation covering all ABLE topics (what is ABLE, who qualifies, how it works and much more) is followed by Q&A.
ABLE Today presents Intro to ABLE webinar series. Join experts to learn about ABLE Accounts. A 30 minute presentation covering all ABLE topics (what is ABLE, who qualifies, how it works and much more) is followed by Q&A.
The Build Your Plan ® tool helps people with intellectual and developmental disabilities (I/DD) think about and plan for their future. The interests, preferences, and skills of the person with I/DD are the main focus. The tool guides you through important topics
The Build Your Plan ® tool helps people with intellectual and developmental disabilities (I/DD) think about and plan for their future. The interests, preferences, and skills of the person with I/DD are the main focus. The tool guides you through important topics
