Find resources you need to navigate your journey with Angelman syndrome. Whether you are newly diagnosed or looking for ongoing support, you’ll find resources to assist every step of the way. Use filters to search by subtopics, life stage, or even location to find information.
This series will empower you to take the first steps in building a Future Care Plan for your family. Featuring on-demand webinars, interactive resources, and Q&A opportunities. Complete the series to:
This series will empower you to take the first steps in building a Future Care Plan for your family. Featuring on-demand webinars, interactive resources, and Q&A opportunities. Complete the series to:
Introducing AS Grows Up
In January 2025, ASF published an Adult Survey. Caregivers and family members of adults with AS shared their realities including: their victories, challenges, and urgent gaps in resources and support. Now, we are taking bold action to close the gaps in essential support and expand the vital resources and services families desperately need.
Introducing AS Grows Up
In January 2025, ASF published an Adult Survey. Caregivers and family members of adults with AS shared their realities including: their victories, challenges, and urgent gaps in resources and support. Now, we are taking bold action to close the gaps in essential support and expand the vital resources and services families desperately need.
Free. ASF Family Support Funds are 3 different funding opportunities with different goals. Angelman families can apply for funds to gain access to resources (safety beds, strollers, medical equipment) needed to improve the quality of life for an individual with Angelman syndrome, apply for funding for respite opportunities for caregivers, and apply for funds to make a meaningful impact in the life of their individual with Angelman syndrome.
Applications are open October 1 – 14
Free. ASF Family Support Funds are 3 different funding opportunities with different goals. Angelman families can apply for funds to gain access to resources (safety beds, strollers, medical equipment) needed to improve the quality of life for an individual with Angelman syndrome, apply for funding for respite opportunities for caregivers, and apply for funds to make a meaningful impact in the life of their individual with Angelman syndrome.
Applications are open October 1 – 14
ASF gives families a place to begin—offering support, reassurance, and real-life examples that show what is possible. We offer ideas that are already tested by others, families don’t have to start from scratch when planning for the future.
Adult Housing Champions are caregivers who have navigated one of these situations for their loved one and are available to guide and share their experience with others.
ASF gives families a place to begin—offering support, reassurance, and real-life examples that show what is possible. We offer ideas that are already tested by others, families don’t have to start from scratch when planning for the future.
Adult Housing Champions are caregivers who have navigated one of these situations for their loved one and are available to guide and share their experience with others.
A collection of videos focusing on various aspects of life for adults with Angelman syndrome. The playlist includes expert discussions on topics such as health management, independent living, employment opportunities, and social engagement for adults with Angelman syndrome. The series aims to provide valuable insights and resources for caregivers, families, and individuals seeking to enhance the quality of life for adults affected by this condition.
A collection of videos focusing on various aspects of life for adults with Angelman syndrome. The playlist includes expert discussions on topics such as health management, independent living, employment opportunities, and social engagement for adults with Angelman syndrome. The series aims to provide valuable insights and resources for caregivers, families, and individuals seeking to enhance the quality of life for adults affected by this condition.
Free. Families apply for funds to assist in gaining access to resources that are needed to improve the quality of life for an individual with Angelman syndrome.
Free. Families apply for funds to assist in gaining access to resources that are needed to improve the quality of life for an individual with Angelman syndrome.
These resources aim to assist families and caregivers in navigating financial planning and understanding government benefits for individuals with special needs.
These resources aim to assist families and caregivers in navigating financial planning and understanding government benefits for individuals with special needs.
Free. Care for yourself with the ASF Respite Fund. Apply for funding that can help you take a meaningful break from caregiving responsibilities.
Application is open October 1-14
Free. Care for yourself with the ASF Respite Fund. Apply for funding that can help you take a meaningful break from caregiving responsibilities.
Application is open October 1-14
Free. Apply for funds to support something that makes a meaningful impact in the happiness of your individual with Angelman syndrome. Not a clinical need, but something that would make their life happier.
Application is open October 1-14
Free. Apply for funds to support something that makes a meaningful impact in the happiness of your individual with Angelman syndrome. Not a clinical need, but something that would make their life happier.
Application is open October 1-14
Mass Mutual’s Head of SpecialCare, Kelly Piacenti ChSNC®, discusses how to plan for the future needs of dependents with special needs. Future considerations covered include medical, educational, employment, housing, travel, transportation, social, recreational, and skill development.
Mass Mutual’s Head of SpecialCare, Kelly Piacenti ChSNC®, discusses how to plan for the future needs of dependents with special needs. Future considerations covered include medical, educational, employment, housing, travel, transportation, social, recreational, and skill development.
