Massachusetts General Hospital
This website provides education about epilepsy and its impact on children and families. This site includes videos of families stories as well as information on diagnosis and treatment.
SeizureTracker.com is dedicated to providing people living with epilepsy and their doctors with free comprehensive tools to help understand relationships between seizure activity and anti-epileptic medications. Become active leaders in your individual with AS’s treatment, working hand-in-hand with doctors. Easy-to-use tools found at SeizureTracker.com allow you to create personalized reports of logged seizure activity and medication history that can be easily shared with their medical team.
Sleep Activity Monitor with monitors abnormal movements with a loud alarm, see and hear what is happening and makes recordings that you can share with your doctors.
Smart watch that monitors behavior and and sleep with alerts for unusual events.
Birdhouse Track Seizures app
Helps identify seizure triggers, keep a medication log and evaluate diets.
LGIT is a high-fat, limited-carbohydrate diet proven successful in reducing seizures in AS by up to 90%. Supervision by at physician familiar with the treatment is needed.
Angelman Syndrome Clinic at Massachusetts General Hospital
Where a group lead by Dr. Ron Thibert, D.O., neurologist and pediatrician at Massachusetts General Hospital, completed a clinical research study on LGIT.
The Charlie Foundation
Provides resources and information about diet therapies including recipes, kitchen products and a world wide list of locations where families can see a physician to be placed on the ketogenic diet.
ASF Educational Webinars
- Focus on Seizures & LGIT – Dr. Ronald Thibert. Watch Now
View the French translation of this webinar.
- Learn the ABC’s of the Low-Glycemic Index Treatment (LGIT) from a Mother and Expert. – Sybille Kraft-Bellamy Watch Now
The Epilepsy Diet Treatment: An Introduction to the Ketogenic Diet – by M.D. John Mark Freeman and Millicent T. Kelly, R.D., L.D.
available on Amazon