Experiences of Adult Siblings of Individuals with Intellectual Disabilities

This study is being conducted by Natasha Shukla, M.S., a student at Texas Women’s University, as part of her dissertation. The study will explore the experiences of adult siblings of individuals with intellectual disabilities in the United States. This study will ask you about your experience being an adult sibling of an individual with an intellectual disability, general demographic information, and questions related to your sibling’s behaviors, stigmatization of being a sibling of an individual with a disability, and your psychological well-being.


Participant Requirements

  • Must be 18 years old or older. 
  • Must be the sibling of an individual with an intellectual disability, such as Angelman syndrome.
  • Agree to spend 30 – 45 minutes completing surveys about your experiences. 

All participants who complete the study will have the option to be entered in a drawing to win one of two $25 Amazon Gift Cards. 

More Information

Any questions about this study can be directed to the primary investigator, Natasha Shukla, NShukla1@twu.edu.

The Angelman Syndrome Foundation does not endorse any clinical trial or study, but provides information to the AS community for its own consideration.