GFAS Ukraine and ASF partner to Launch Clinic in Ukraine
The Angelman Syndrome Foundation is proud to announce their partnership with Genefund Future Angelman Syndrome (GFAS Ukraine) to launch a new clinic to better serve the community in Ukraine.
“Bright people are always visible in dark times. In the most difficult times for Ukraine and our community, Amanda Moore and the Angelman Syndrome Foundation were by our side. A year ago, we couldn’t even dream of this, but miracles do happen, especially before Christmas.” Anna Kyrychenko, CEO of GFAS Ukraine
“We are so honored to be partnering with such a strong organization like GFAS Ukraine to bring a much-needed clinic to the community and into the LADDER Learning Network.” Amanda Moore, CEO of the Angelman Syndrome Foundation
ABOUT LADDER LEARNING NETWORK
The purpose of the LADDER Learning Network is:
- Connecting families with experienced, highly specialized medical providers, through its ASF Clinics and Dup15q Clinics. Providers within the clinics have experience and expertise in treating these two rare disorders, which has historically been difficult for families to find.
- Connecting medical providers with one another, through monthly video calls, so they can share information about their most challenging cases.
- Connecting the industry with much needed locations to host clinical trials, with the benefits of having patients in place when they become available.
- Maintaining the LADDER Database, its global network of patient data, to ease the burden of paperwork on families.
Learn more: www.angelman.org/ladder-network
ABOUT GFAS UKRAINE
Our mission is to inform adults and children suffering from Angelman’s syndrome, their relatives and friends about freedoms, rights and opportunities. Our aim is to create a diagnostic, rehabilitation, medical, inclusive, informational, advisory and entertainment space for children and adults with Angelman syndrome. To learn more, visit genefund-future.com.ua
ABOUT ANGELMAN SYNDROME FOUNDATION
The mission of Angelman Syndrome Foundation is to advance the awareness and treatment of Angelman Syndrome through education and information, research, and support for individuals with Angelman Syndrome, their families and other concerned parties. We exist to give all of them a reason to smile, with the ultimate goal of finding a cure.