ASF Family Conference 2022

ASF Family Conference 2022

August 2-5, 2022 Round Rock, TX

Every other year the ASF holds the Family Conference & Research Symposium to gather families, care providers, therapists, teachers, scientists, researchers and doctors under one roof to learn and discuss the latest information on Angelman syndrome.

August 2-5, 2022
Kalahari Resort in Round Rock, TX

 

Session Handouts

Yoga for Angelman Syndrome
Hilda Tourians 

Insurance, Waivers and Angelman Syndrome – Community Alternatives
Eric Wright

AAC Implementation
Tabi Jones-Wohleber

 

Session Recordings

Pharma & Biotech Industry Update
Roche  |  GeneTx/Ultragenyx  |  PTC Therapeutics  |  Ionis  |  Neuren Pharmaceuticals​

 

Behavior & Anxiety in Angelman Syndrome
Chris Keary, MD  |  Anne Wheeler, PhD  |  Cesar Ochoa, MD  |  Anjali Sadhwani, MD

 

Clinical Expert Panel
Dr. Ron Thibert  |  Mark Nespeca, MD  |  Elizabeth Berry Kravis, MD  |  Jessica Duis, MD